Jacob was born on 15th February 2011, 6 days early. It was only after a week that we began to notice he was feeding continuously but almost too exhausted to feed properly. His weight was dropping and after 2 weeks and 6 days of not being able to gain enough weight to get to his birth weight, the midwife felt he should be admitted for investigation. In that time the results of his heel prick had come back positive for cystic fibrosis.
Cystic fibrosis affects all the major organs by clogging them with thick sticky mucus making them more prone to infections. The lungs and pancreas are most affected. Jacob is unable to absorb fats or protein from his foods without taking enzymes before eating. This is due to his pancreas being clogged with mucus and therefor unable to release te enzymes he needs to absorb foods. He has 2 sessions of physio each day to clear any mucus, preventing any infections. He also takes a variety of preventative medications and vitamins and attends regular hospital appointment . The hospital app ensure the team are in too of anything they need to be. This is Jacobs life when he is 'well', treatments change depending on illness etc. To look at Jacob, you wouldn't know but to take a look on the inside would be a different image. He is an active little boy who just loves life. :)