Morgan was born in May 2007 by emergency caesarean section following a routine visit to the midwife where a dropping heart rate was discovered. Morgan spent the first 2 weeks of his life in intensive care before returning to Peasedown to start his life.
At 6 months old Morgan was diagnosed with spastic quadriplegia cerebral palsy which means he hasn’t had the childhood his young parents had planned for him and parenthood has been very different from what his parents had expected. Morgan also suffers from epilepsy (although very well controlled with medication) and is visually impaired, he can see colours, light/dark, outlines but nothing more.
Morgan has been fed via a gastrostomy peg since he was 2 years old after countless chest infections and one admittance to intensive care for pneumonia (as a result of food going down into his lungs and causing an infection).
In June 2013 Morgan was fitted with a baclofen pump as the high doses of oral baclofen were no longer effective in helping Morgan’s muscle tone. The surgery was life changing for Morgan and his muscle tone improved but unfortunately after 2 weeks Morgan developed an infection due to the metal used in the pump and it had to be removed. Medication was not successful in treating the infection and it was 6 months before Morgan was able to have a new pump fitted. This surgery took place on New Year’s Eve 2013 and although the pump is still working the second pump never had the positive impact on Morgan the first pump did. The pump sits under the skin just below the ribs and holds 20mls of baclofen, it then has a catheter that goes around into his spine meaning that the baclofen is constantly trickling through and should be more effective this way. This means that Morgan’s muscle tone is still very high causing him to be in constant pain and suffering a great deal of discomfort.
Morgan struggles to maintain his weight as he's constantly burning calories fighting against the tightness of his muscles.