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LoveQuiltsUK - James K's quilt

James K's quilt    (Quilt Completed)

Born:June 2014
Illness: Xq28 duplcation, microsomnia, gdd, dysphasia, oesophagius clearance problems

Theme: Safari Animals

Quilt delivered: 21st Feb 2017
Photo of James K

Thank you

Would like to thank everyone from the bottom of our heart for James quilt he absolutely loves it. It came today x thank you for all the hours time and effort to each and everyone of you x you're all amazing



Finished photos


Photo of James Ks quilt

Photo of James Ks quilt

Photo of James Ks quilt


Quilted by: Sandra (Beds)

Individual squares

Cross stitch square for James K's quilt
Stitched by: Alison (+)
Submitted: Jan 2017

Cross stitch square for James K's quilt
Stitched by: Eileen (+)
Submitted: Jan 2017

Cross stitch square for James K's quilt
Stitched by: Elaine (+)
Submitted: Jan 2016

Cross stitch square for James K's quilt
Stitched by: Elaine (+)
Submitted: Jan 2017

Cross stitch square for James K's quilt
Stitched by: Ellie (+)
Submitted: Nov 2016

Cross stitch square for James K's quilt
Stitched by: Heather (+)
Submitted: Oct 2016

Cross stitch square for James K's quilt
Stitched by: Jan (+)
Submitted: Oct 2016

Cross stitch square for James K's quilt
Stitched by: Leanne Malcolmson (+)
Submitted: Jun 2016

Cross stitch square for James K's quilt
Stitched by: Marilyn (+)
Submitted: Jan 2017

Cross stitch square for James K's quilt
Stitched by: Michele (+)
Submitted: Jan 2017

Cross stitch square for James K's quilt
Stitched by: Miss Debbie Elkington (+)
Submitted: Oct 2016

Cross stitch square for James K's quilt
Stitched by: Pat Brown (+)
Submitted: Nov 2016


Fabric

Fabric for James K
Fabric for James K

Card

Card for James K
Stitched by: Leanda

Biography

When James was born we noticed his face was slanted and he had a tiny hole in the bottom of his spine. My local hospital where I had James dismissed this even tho I asked what was wrong. I spoke to the midwife the next day who came to see us at home and she sent me to my GP who later done swabs and sent us to Birmingham Children's Hospital.

So the tests began: MRI, bloods, X-rays, one after the other. James developed a sucking problem around 2 weeks old I was told by speech and language it was reflux. I knew this wasn't reflux. I pushed and pushed for help with this and no one would help. In the meantime it came back that James had hydrocephalus so he was then sent to another neurologist who then saw James every 3 months who arranged James with genetic testing.

At this point James wasn't doing what most babies do: he never sat up. Then the chest infections started more tests was done everything was coming back normal except X-rays showing clouding on lungs. James was having physio every 2 weeks to help his muscle tone and tortacollis he had been diagnosed with. Through the next few months everything was a blur, every hospital appointment got worse we was being told James had other things wrong with him.

At 10 months old we was told James had bilateral hearing loss (till this day, it's not been fully confirmed as we have seen so many people and James is scared of the machines that they use) and he finally sat up unaided. We reached James first birthday and not long after we got the diagnosis of xq28duplication. Since then we have had GDD delay diagnosed as he is behind especially with speech which he only as around 6 words now.

We recently found out James has a swallowing and esophagus problem which we are still undergoing tests for as we know his esophagus is not working properly. He continues to have reoccurring chest infections and has azithromycin 3 times a week. He has around 4 hours a day sleep and on melatonin. He has thickener in fluids and a soft diet to help with his feeding and swallowing problems he still don't eat and losing weight we are currently waiting to see other doctors about this. We are currently waiting assessments for OCD, ASD ADHD and sensory processing disorder.


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