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LoveQuiltsUK - Chloe W's quilt

Chloe W's quilt    (Quilt Completed)

Born:December 2010
Illness: Smith Magenis syndrome

Theme: Disney Princesses and Frozen characters

Quilt delivered: 4th May 2017
Photo of Chloe W

Thank you

Wow!! Quilt arrived today and its gorgeous!! Cant thank everyone enough for Chloe's quilt!! She absolutely loves it!! She has named every character about a million times and even asked to go to bed (already!!) Chloe has another surgery coming up (luckily it's only for dental work this time) and i know her quilt will be first in her bag!! Thank you so much. You all do an amazing job and are making lots of children happy. Here is a big double thumbs up from Chloe



Finished photos


Photo of Chloe Ws quilt

Photo of Chloe Ws quilt

Photo of Chloe Ws quilt


Quilted by: Jill

Individual squares

Cross stitch square for Chloe W's quilt
Stitched by: Ann Woods (+)
Submitted: Jan 2017

Cross stitch square for Chloe W's quilt
Stitched by: Bethea Bradley (+)
Submitted: Mar 2017

Cross stitch square for Chloe W's quilt
Stitched by: Cath (+)
Submitted: Dec 2016

Cross stitch square for Chloe W's quilt
Stitched by: EE(Beth)Filmer (+)
Submitted: Jan 2017

Cross stitch square for Chloe W's quilt
Stitched by: Hazel Wotherspoon (+)
Submitted: Feb 2017

Cross stitch square for Chloe W's quilt
Stitched by: Jan (+)
Submitted: Jan 2017

Cross stitch square for Chloe W's quilt
Stitched by: Jean (+)
Submitted: Feb 2017

Cross stitch square for Chloe W's quilt
Stitched by: Jeanne (+)
Submitted: Jan 2017

Cross stitch square for Chloe W's quilt
Stitched by: Jo (+)
Submitted: Jan 2017

Cross stitch square for Chloe W's quilt
Stitched by: Julie (+)
Submitted: Nov 2016

Cross stitch square for Chloe W's quilt
Stitched by: Moira Anne Jeffcoat (+)
Submitted: Jan 2017

Cross stitch square for Chloe W's quilt
Stitched by: Monika (+)
Submitted: Apr 2017


Fabric

Fabric for Chloe W
Fabric for Chloe W

Card

Card for Chloe W
Stitched by: Leanda

Biography

Chloe was diagnosed at birth via a blood test. She was found to have a deletion of a chromosome and resulted in her being diagnosed with the rare syndrome, Smith-Magenis.

She then had various tests which have resulted in her being diagnosed with further complications such as a duplex kidney, mass in her brain, larygomalacia, pulmonary stenosis and a hole in her heart. Due to a weakened immune system, she is also faced with recurrent ear, chest, urine and skin infections. These coming months are also going to tough for her as she is due to undergo various anaesthetics for surgeries and testing. She is due to have tonsillectomy and adenoidectomy, as well as grommets inserted, a hernia removed, a lump on her lip removed, imaging on her spine to test the degree of her scoliosis and an EEG done as she is displaying seizure activity. Her syndrome also means she has severe sleep disturbances due to an inverted cicadian rhythm, this can have a big impact on her already stressful behaviours. She has regular meltdowns and has displayed extreme self injurious behaviours.

Despite all this she is the most loving, caring, affection and smiley little girl. She has such an endearing personality and is loved by everyone she meets.


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