Thank you so much to everyone who made this very special quilt for my young man Aaron, received it today, brought tears to my eyes it's so gorgeous, will show Aaron as soon as gets in from school x x
Aaron was born at 39 weeks by ventouse delivery, he was very blue and very floppy at birth, needed oxygen to bring him round. The doctors noticed the signs that something was wrong when Aaron's testes were not descended and nowhere to be felt. He had various tests done, the results came back 2 weeks later, stating had unbalanced chromosomes, too much 14 not enough 18.
Aaron as always suffered badly with chest problems, diagnosed with asthma at a very young age, Aaron can start off with a normal cold and end up with pneumonia, needing hospital treatment, oxygen, IV's etc. He has no mobility and fully wheelchair bound, cannot communicate only by sounds, laughing when happy crying when sad or in pain. At the moment he's having quite bad time of it, he's suffering with secretions, choking lots of the time and being quite upset by it all.