Aimee has always been a very bright, happy, caring little girl. She loved music and dancing from a very young age. Very popular in pres gill and infant school. Aimee was the only child with rhythm at school discos and she knew all the words to the pop songs.
Occasionally at night time Aimee would wake up crying with leg pain but after several visits to the doctors over a couple of years, was told it was growing pains. Aimee is a big sister to Phoebe. They would play with Barbies, dolls and play schools or doctors and patients. Aimee would still wake up with pain in the same leg but still dismissed as growing pains.
Then one week Aimee was suffering quite a few headaches, sickness and nausea. She seemed to have migraines because the light really affected her. The following week Aimee was waking up screaming with leg and& bottom pain. We took her to the doctor and mentioned the headaches etc from the week before as well as the night pains. We got told to get her eyes tested and they couldn't see anything wrong with her legs. The symptoms continued and actually seemed worse, she had a visit to A&E, the out of hours doctor and a hospital appointment. The following week she returned to the hospital and this time a doctor noticed she couldn't bend from her lower back and he did some blood tests. Two days later she was asked to come in for an MRI scan. She was in lots of pain but it was that night we got the terrible news that she had cancer of the head and spine.
She was rushed to a Southampton Hospital via ambulance and endured a very long and intense surgery to remove most of a 10cm tumour from her lower spine, some is still wrapped around nerves and gives her terrible pain. She went through chemotherapy which didn't help her at all, only made her sick and lose all her lovely long brown hair. The tumours in her head and spine even grew slightly. She then went through the most intense radiotherapy her little body could tolerate. 5 days a week for 7 weeks.
Aimee continues to be in pain every single day, she's on lots of medicines, and has lost her appetite so needs to be fed through a nasal gastric tube. She struggles with mobility and now has to be pushed around in a wheelchair. She's become a very sad little girl who unfortunately keeps ending up back in hospital due to some infection or other. Most recently chicken pox and a chest infection. We don't know exactly how her future will be. She has been given a 35% chance of survival. Happy memories need to be made if only we can keep her out of hospital long enough.