Alex was our first boy, we had two girls already. He was born 14 days after his due date. I had to be induced but everything went smoothly and he was born looking like a typical baby boy except for one small cosmetic issue that would require surgery. Alex struggled very early on with feeding and so at a month old I switched to bottle feeding him. He would only take tiny amounts of milk but wanted feeding every few minutes. Alex had a double squint that we noticed around 2-3 months and it wasn't long after that we became concerned he wasn't moving very much. He would lie on his back just staring at any lights he could see. When Alex was 7 months he was referred to a community paediatrician. When Alex was 1, he just started sitting but this had to be supported. He was then referred to OT, Speech & Language, ENT, Physio and the Portage team.
Alex struggled with eating and had blended food, he was extremely underweight and had to be closely monitored. Upto the age of 5 ,Alex suffered numerous chest infections and breathing issues. He was later diagnosed with Sleep Apnoea. He has since had his tonsils removed and is much better sleeping, although he still struggles sometimes. Alex took his first steps around his 2nd birthday but then didn't try again until his was 2 years and 10 months. He was then giving a frame to help him walk. He no longer uses the frame and walks in the house, outside he uses a chair most of the time.
Alex had lots of support and encouragement from many professionals over the years and is still under lots of professionals. This is mainly to monitor his progress.
He is a very happy little boy who enjoys watching Disney movies and being outside. He is almost 8 now and is Home schooled. He was taken out of school this year as he struggles with school and the people and noise that goes with it. He attended a special needs school which worked for nearly 3 years. He still needs feeding and his food is still cut into very small pieces, he is double incontinent, very limited understanding and communication. He is making progress everyday just at a much slower rate than his peers.
Alex enjoys hiding under covers and clothes which is why I know he will love his quilt.