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LoveQuiltsUK - Clara W's quilt

Clara W's quilt    (Quilt Completed)

Born:November 2014
Illness: Smith lemli opitiz

Theme: My Little Pony, Care bears etc

Quilt delivered: 8th Nov 2017
Photo of Clara W

Thank you

Hi guys we received the beautiful quilt you all made and wanted to say a massive thank you ,Clara loves it and it's so very kind. Have been telling everyone about you all and your fantastic work of spreading kindness from around the world thanks again to all the amazing people who took the time for my daughter xxxx



Finished photos


Photo of Clara Ws quilt

Photo of Clara Ws quilt

Photo of Clara Ws quilt

Photo of Clara Ws quilt

Photo of Clara Ws quilt


Quilted by: Sandra (Beds)

Individual squares

Cross stitch square for Clara W's quilt
Stitched by: Anne (+)
Submitted: Apr 2013

Cross stitch square for Clara W's quilt
Stitched by: Ellie (+)
Submitted: Mar 2017

Cross stitch square for Clara W's quilt
Stitched by: Ellie (+)
Submitted: Mar 2017

Cross stitch square for Clara W's quilt
Stitched by: Erika Lowe (+)
Submitted: Sep 2013

Cross stitch square for Clara W's quilt
Stitched by: From the ladies from Pillow Action (+)
Submitted: Oct 2015

Cross stitch square for Clara W's quilt
Stitched by: From the ladies from Pillow Action (+)
Submitted: Oct 2015

Cross stitch square for Clara W's quilt
Stitched by: Lesleyann Curran (+)
Submitted: Apr 2016

Cross stitch square for Clara W's quilt
Stitched by: Margaret (+)
Submitted: Feb 2017

Cross stitch square for Clara W's quilt
Stitched by: Nicola (+)
Submitted: Jul 2015

Cross stitch square for Clara W's quilt
Stitched by: Patricia (+)
Submitted: Jul 2017

Cross stitch square for Clara W's quilt
Stitched by: Sandra (+)
Submitted: Oct 2017

Cross stitch square for Clara W's quilt
Stitched by: Sarah (+)
Submitted: Nov 2015


Card

Card for Clara W
Stitched by: Harriet Morrison

Biography

Clara was born a healthy baby Except from her being small through pregnancy she passed all the tests it was noticed that she had a cleft palate in the back of her mouth and webbed toes But no major concerns . The main thing we were worrying about was her feeding as clara had to be fed through a NG tube until her palate was repaired ,after seven months Clara still had not hit her birth weight of 4lb 7 she was sent to alderhey Children’s Hospital for a peg to be placed to help with growth so she could have surgery for the palate to be repaired while there the doctors decided something else was going on. Clara showed other signs of a syndrome but not knowing after lots of tests it showed that Clara aspiratrating regularly and had craniosynostosis which is a fusion of the skull. After weeks of tests The doctors still had no answers we were lucky a nurse who had worked on the one other child who had been in alderhey Children’s Hospital in the last 25 years . She helped us get a diagnosis which unfortunately confirmed our daughter had Smith lemli opitiz syndrome this is a life limiting syndrome which stops her producing cholesterol this has affected the growth of her body and her brain. This also causes problems with the major organs of the body. Clara has already had numerous surgeries to do with her stomach her intestines and her palate andI will have more in the future however she has shocked all of the doctors in her strength of character she’s a fighter . she shouldn’t do anything but she does. she is sitting ,playing ,moving ,trying to talk and stand even though they told us she wouldn’t do any of these things she is a warrior we are so proud of her


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