Chris's quilt was at the post office today. It is lovely. I cried when I saw it. Hubby cannot believe that you all put that much hard work into it. Chris is at respite at the mo so not seen it yet. I will post a photo of him with it tomorrow if that is ok. So thank you very much to each of the lovely ladies who stitched a square, for the lovely ladies who quilted it and to Valerie who finished it for us.
Chris loves pouring from container to container rice, beans, pasta etc. One of the signs he loves his quilt is to be doing this activity on it! Thank you so very much!
Christopher was born on 27.05.01, a very healthy baby.
He had a very healthy 6 months and had a seizure out of the blue. This was no ordinary seizure though. It lasted half an hour, needed lifesaving drugs and hospital stay. It was caused they thought by septeacemia. He continued having these
life threatening seizures, with a few stays in PICU in London - St Georges and Guys Hospital. Often he ended up in respiratory arrest due to all the drugs given.
It was noticed during these first few turbulent years that his DE was not right. He did not verbalize, point, share or try to communicate. A diagnosis of autism was given, and later we realised along with Severe Learning Disabilites. The seizures ceased at the age of 6. But unfortunately they have reared their ugly head again and he is now having nocturnal seizures every few nights.
He however is a happy little chap, who loves school (he attends a school for children with severe and complex learning disabilites)