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LoveQuiltsUK - Emily B's quilt

Emily B's quilt Angel   (Quilt Completed)

Born:January 1995
Illness: Niemann-pick disease type c

Theme: Hearts (Emergency Quilt)

Quilt delivered: 6th Mar 2012
Photo of Emily B

Thank you

Can't thank you enough to all those who helped make Emily's beautiful quilt, she's tucked up with it at the hospital, fast asleep and making really good progress we were blown away how beautiful it is and thank you again for all your hard work. Lots of love The Bushaways ♥ xxxxx



Finished photos


Photo of Emily Bs quilt

Photo of Emily Bs quilt

Photo of Emily Bs quilt


Quilted by: Rebecca

Individual squares

Cross stitch square for Emily B's quilt
Stitched by: Amanda (+)
Submitted: Jul 2011

Cross stitch square for Emily B's quilt
Stitched by: Annette (+)
Submitted: Jul 2011

Cross stitch square for Emily B's quilt
Stitched by: Denise Stansbury (+)
Submitted: Aug 2011

Cross stitch square for Emily B's quilt
Stitched by: Denise Stansbury (+)
Submitted: Aug 2011

Cross stitch square for Emily B's quilt
Stitched by: Gilly Painter (+)
Submitted: Aug 2011

Cross stitch square for Emily B's quilt
Stitched by: Ginny Pledger (+)
Submitted: Aug 2011

Cross stitch square for Emily B's quilt
Stitched by: Kay (+)
Submitted: Jul 2011

Cross stitch square for Emily B's quilt
Stitched by: Kaye (+)
Submitted: Nov 2011

Cross stitch square for Emily B's quilt
Stitched by: Leanne Malcolmson (+)
Submitted: Aug 2011

Cross stitch square for Emily B's quilt
Stitched by: Sandra (+)
Submitted: Aug 2011

Cross stitch square for Emily B's quilt
Stitched by: Seren Senior (+)
Submitted: Jul 2011

Cross stitch square for Emily B's quilt
Stitched by: Tracey (+)
Submitted: Aug 2011

Cross stitch square for Emily B's quilt
Stitched by: Tracey (+)
Submitted: Aug 2011



Biography

Emily was our 2nd child sister to her big brother Harry. We started having concerns when Emily started school showing signs of struggling with routine change and becoming emotionally confused. After ongoing suggestions of a possible diagnoses, Emily started so show signs of walking difficulties and 'blank' episodes, falling over for no apparent reason. This led us to push to get her referred to Great Ormond Street Children's Hospital.

Tests and six months later we were given the devastating news that Emily had NPC.

Emily can no longer walk, talk, and is fed via gastro. She has faced some unbelievable challenges but continues to amaze us with her courage and strength and love in her eyes. We also found out three years ago that Emily's younger sister Sarah also has NPC.

As a family we do our best to keep our girls and remarkable son happy and love them with all our heart.


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