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LoveQuiltsUK - Jake F's quilt

Jake F's quilt    (Quilt Open)

Born:April 2001
Illness: Leigh’s Syndrome

Theme: Star Wars characters and spaceships/rockets

Date opened: 20th Jun 2018
Deadline: 26th Oct 2018

Photo of Jake F

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for Jake F

Child Interests

Jake love Star Wars, Disney, Birmingham City, Power Rangers, Superheros, Penguins and all animals. His favourite colour is blue. His bedroom is in Star Wars.


Biography

When I was pregnant with Jake we lost his brother aged 4 to Leigh’s. Leigh’s is genetic. When Jake was born he appeared well and the Drs and we thought we had been lucky and he was well. Sadly not. At 9 months he started losing skills, stopped sleeping through the night and crying in pain. We thought at first he just had a virus but he just got worse. We got in touch with Birmingham Children’s Hospital and they got a bed for him to go in for tests and montioring. He had blood, urine, MRI and a muscle biopsy. This confirmed he had Leigh’s. He lost his ability to sit up, developed epilepsy and had repeated muscle spasms. He has now got scoliosis, dislocated wrists, hips, ankles and a knee. He suffers a lot with pain, and has to take numerous medications. His condition is. Life limited and we don’t know how long we will have him for. He had a peg in his tummy for all his medicines, overnight feeds, and top up feeds when he can’t swallow. He can’t keep his weight on and needs these feeds to stay a healthy weight. He has regular botox to help with the muscle spasms and dystonia.

His health has gone down in the last few years and he has a very low immune system. We have to keep away from crowded places and anyone with an infection. We try to make the most of everyday.
Through all this our gorgeous boy keeps smiling, being cheeky and enjoying life. He can’t say ,any words yes, no, more, again and Blues for Birmingham City his favourite football team but he makes sure we know what he wants.



Patterns (1 stitcher needed)   (Sign up here)


1.BB-8 from StarwarsStitcher: Kay, Doncaster, UK
In Progress

2.LQ files C3PO head by BethStitcher: Val Gilbert, Coningsby , UK
In Progress

3.Cross Stitch Creations Star Wars 12 out of this world patterns R2-D2Stitcher: EE(Beth)Filmer, Adelaide, Australia
In Progress

4.Free DMC mini patterns Free DMC patterns. 4 small patterns include a rocket, satellite and planets. The word Space is stitched between.Stitcher: Alison Wells, West Yorkshire, UK
In Progress

5.LQ Files Rocket ship blasting off into spaceStitcher: Nicola, St Albans, UK
In Progress

6.Love Quilt Files - Star Wars LogoStitcher: Kirsty Smith, Bowburn, UK
In Progress

7.LQ files Cartoon RocketStitcher: Sarah Kerry, Sandiacre, UK
In Progress

8.Cross stitch patterns.eu Rocket in spaceStitcher: Gail, Lochgelly, Scotland
In Progress

9.Star wars 12 out of this world patterns YodaStitcher: Moira Anne Jeffcoat, Birmingham, England
In Progress

10.Yoda/Darth Vader with Star Wars fontStitcher: Emma, Bedford, UK
In Progress

11.

12.Label Stitcher: Jayne, Sydney, Australia
In Progress


Squares received

None yet. (Quilt opened on 20th Jun 2018)


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