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LoveQuiltsUK - Reece B's quilt

Reece B's quilt    (Quilt currently being assembled)

Born:July 2008
Illness: Klinefelters, syndrome, Robinow syndrome,Asskogth Syndrome,tracheal abnormallity tracheostomy, tracheomalacia with long term segmental, bio pap ventil

Theme: Dinosaurs etc

Quilt currently being assembled
Photo of Reece B

Theme details

Dinosaurs etc - Backfilled quilt



Biography

Reece is a fun loving young man when will, copes really well being attached to a ventilator 23 hours. Reece has had several issues with the lack of tracheal ring in his throat from birth resulting in now having customed made trachys to help keep his throat open. Because of the klinefelters syndrome Reece has had to have several operations to bring his testicals from his stomach, to a cooler part of the body as far as his short blood supply would go. To lesson the fear of testicular cancer. Reece is a great advect for complex children, he just gets one with his life where possible with the restrictions the ventilator along with humidifier lets him.
We are almost to completion of his Emergency Health Care Plan, the final paperwork is awaiting confirmation of the low heart rate he is now experiencing, one the hospital agree this his end of life plan will be in place..



Patterns


1.Stitcher: Anne, Sandefjord, Norway
Received

2.Stitcher: Margaret, Wolverhampton, UK
Received

3.Stitcher: Yvonne, Devon, UK
Received

4.Stitcher: Ginny Pledger, Earls Barton, UK
Received

5.Stitcher: Megan, Victoria, Canada
Received

6.Stitcher: Alice Watts, Edinburgh, UK
Received

7.Stitcher: Nicola Staples, Gosport, UK
Received

8.Stitcher: Eileen, Newcastle, UK
Received

9.Stitcher: Sarah, Leeds, UK
Received

10.Stitcher: Sarah, Leeds, UK
Received

11.Stitcher: Monika, Letchworth GC, UK
Received

12.Label Stitcher: Heather, Littleborough, England
Received


Squares received

Cross stitch square for Reece B's quilt
Stitched by: Anne
Submitted: Jun 2016

Cross stitch square for Reece B's quilt
Stitched by: Margaret
Submitted: Jun 2016

Cross stitch square for Reece B's quilt
Stitched by: Yvonne
Submitted: Apr 2017

Cross stitch square for Reece B's quilt
Stitched by: Ginny Pledger
Submitted: Apr 2017

Cross stitch square for Reece B's quilt
Stitched by: Megan
Submitted: May 2017

Cross stitch square for Reece B's quilt
Stitched by: Alice Watts
Submitted: Jun 2017

Cross stitch square for Reece B's quilt
Stitched by: Nicola Staples
Submitted: Sep 2017

Cross stitch square for Reece B's quilt
Stitched by: Eileen
Submitted: Sep 2017

Cross stitch square for Reece B's quilt
Stitched by: Sarah
Submitted: Nov 2017

Cross stitch square for Reece B's quilt
Stitched by: Sarah
Submitted: Dec 2017

Cross stitch square for Reece B's quilt
Stitched by: Monika
Submitted: Feb 2018

Cross stitch square for Reece B's quilt
Stitched by: Heather
Submitted: Jul 2018


Card

Card for Reece B
Stitched by: Sarah Murphy

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