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LoveQuiltsUK - Frankie H's quilt

Frankie H's quilt    (Quilt Closed)

Born:January 2015
Illness: Dravet Syndrome

Theme: Space

Date opened: 31st Oct 2018
Date closed: 8th Nov 2018
Deadline: 25th Feb 2019

Photo of Frankie H

Child Interests

Frankie loves, Teletubbies, Twirlywoos, Mr Tumble, Little Baby Bum Nursery rhymes (on you tube). He also likes Waybaloo, characters from the Disney film “Inside Out”, In the Night Garden, Bing and Woolley and Tig. He enjoys Mr Maker Arty Party and the shapes. He doesn’t have a favourite colour.


Frankie was born a healthy 9lb 3oz baby. Within 6 weeks he had numerous seizures ranging from 1 min to over 1 hour long. At 4 months old Frankie suffered a seizure causing him to be placed on life support and leaving us unsure of lasting brain damage. From the age of 8 months Frankie has suffered daily from 100s of seizures and extreme photosensitivity to daylight (he has to wear sunglasses which are patched on one eye). His photosensitivity was so bad at one point we were housebound for over 3 months with all blinds and curtains pulled just to offer a bit of relief from seizures. He was also born with only one working kidney and at the very tender age of 3 weeks he had his first operation. He has now had over 5 operations and countless procedures to try and rectify this. Frankie takes a very strong cocktail of drugs (5 anti-epileptic medicines) and he still stuffers seizures. He has been involved in a drug trial for the last year which has been very very intense and has shown yet another medical issue with his heart. This is currently being monitored by the cardiology department and he receives heart echoes regularly to ensure there is no further damage from the trial drug. Given Frankie's medical issues he remains a very happy, active little boy who loves music, dancing and generally being a mischievous little boy who we love dearly.


1.Pattern taken from LQUK Facebook files. Title: Rocket ship blasting off into space cross stitch design Circle design with white spaceship flying through a rainbow and stars. Stitcher: Emma Barnett , Stone, Staffordshire , UK
In Progress

2.Climbing Goat Designs Space Adventures Moon, astronaut holding a flag, stars, rocket and planetStitcher: Nicola, St Albans, UK
In Progress

3.Champagne Collections Boy in rocket with earth and starsStitcher: Rosemary Binnie, Macclesfield, UK
In Progress

4.Https://,by-theme-intergalactic-478.html DMC free space patterns arranged in a nice busy squareStitcher: Helen, Thrapston, UK
In Progress

5.Rocket Launch by NastyandCross on Etsy Red rocket with blue background in an oval with billowing steam/smoke at bottom Stitcher: Helen Irwin, Hull, UK
In Progress

6.Climbing goats \\\'Solar System\\\' Sun and planetsStitcher: Sarah W, Cornwall, England
In Progress

7.Cartoon spaceship - Gemma Harris pattern in LQ filesStitcher: Jan , Lincs, UK
In Progress

8.Crazy for Space motifs Variety of planetsStitcher: Kate, Leics, UK
In Progress

9.Ufo beaming something up out of a forest Stitcher: Kirsty Edgcumbe, Haverhill, Suffolk , UK
In Progress Spaceship with alien by Ann LoganStitcher: Joanne Heap, Liverpool, UK
In Progress

11.The planets from The Final Frontier by Stoney Creek The planetsStitcher: Sandra, Shefford, England
In Progress

12.Label Stitcher: Jan, Hull, UK
In Progress

Squares received

None yet. (Quilt opened on 31st Oct 2018)

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