Thank you to everyone involved in the making of Skye's quilt. She loves it - and so do we! She's sitting on the sofa, snuggled up in it at the moment, introducing her toys to each of the squares. It's true - the photos on the website DON'T do the squares or quilts justice. Hopefully she'll be approved for the big op next year which would improve her life no end. If so, I know the first thing that will go into her hospital bag!
Thank you all. I can't express just how grateful we are!
Skye, Ruth and John xxx
Skye - when she was born she weighed less than a bag of sugar, just 880g. sShe was born at 27 weeks but no-one really knows why she was so early. She stayed in hospital for 9 weeks, learning to breathe, feed and stay warm.
Everything seemed to be going well for her - she learned to sit unaided, crawl and pull herself up - slightly late, but she got there. However, then the physio started picking up on some patterns of movement she had which were slightly worrying. The physio continued to monitor and work with her until she was sure. The paediatrician confirmed it - she has Spastic Diplegic Cerebral Palsy.
She did begin walking unaided just before her diagnosis, but even 6 months on, she is very wobbly and gets tired easily.
Since her diagnosis in June 2011 life has been very busy â€“ sheâ€™s been into hospital for Botox injections, and has an extensive physio routine which mum does with her at home and sheâ€™s being considered for major surgery called SDR. Although she can walk, sheâ€™s also been ordered her first wheelchair for helping her when walking a long way as she tires very easily.
A Love Quilt would give her something familiar to take with her when she goes in for hospital treatment â€“ sheâ€™s had a number of admissions with wheezing where sheâ€™s had to be in for a few nights. Sheâ€™s also had Botox treatment which will probably be repeated. Also when sheâ€™s feeling stiff and sore when her muscles are particularly tight - growth spurts and when sheâ€™s poorly - it would be wonderful to have a quilt to snuggle up with.