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LoveQuiltsUK - Megan D's quilt

Megan D's quilt    (Quilt currently being assembled)

Born:2009
Illness: Inverted duplication deletion 8p

Theme: Disney characters

Quilt currently being assembled
Photo of Megan D

Theme details

Disney characters - Anything Disney she loves animals.
Favourites are Nemo, Lion king, Stitch



Biography

Megan was born at 37 weeks and at first she wouldn’t feed. A few days later the paediatrician noticed that she had a cleft palate.

Megan never reached any of her milestones. Megan was my second child and I knew there was something wrong. The consultant that repaired Megan's cleft at 9 months old agreed to take some bloods while she was under anaesthetic. Just before Megan‘s first birthday we got the phone call that Megan had a rare chromosomal disorder. It wasn’t a total shock as I knew there was something wrong. Megan then started to have all the checks, she was diagnosed with ACC; the two sides of Megan's brain are not connected.

Megan started to have seizures. She had developed a curve at the bottom of her spine. She’s currently waiting complex spinal surgery.


Megan has a hearing and vision impairment and is registered partially sighted. Megan never thrived and struggled to feed and put on weight due to the cleft. She had a NG tube fitted then a peg and now she’s got a button. Her weight was static. When she went to surgery for her button the consultant started to investigate this. Megan was then diagnosed with coeliac‘s disease. Once we changed her diet she started to put on weight.

Megan has kidney damage and is on medication for this and is currently under investigation due to swelling. Megan has had a number of surgeries and she is awaiting another surgery for her right foot and leg; she’s had the left done already.

Due to Megan's blood disorder she has a weak immune system so she picks up everything and takes about two months to get over a chest infection. Megan also suffers with reflux so needs to take care during the night.

Megan has to take a number of medications throughout the day and relies on adults for all her care 24/7.



Patterns


1.Jessie, from LQUK filesStitcher: Diane, Middlesex, UK
Received

2.Disney a punto croce no 88 SimbaStitcher: Jill Smith, Taunton, England
Received

3.LQ patterns Squirt from Finding NemoStitcher: Seren Senior, Derby, UK
Received

4.Disney Winnie the pooh booklet Winnie the pooh with broken honey potStitcher: Julie Edgcumbe, Haverhill, Suffolk, UK
Received

5.From Facebook group Forky design from LQ FilesStitcher: Sarah, Enfield, London, UK
Received

6.Stitch face from Lilo and Stitch by Gemma Harris in the files Stitch face close upStitcher: Helen Irwin, Hull, UK
Received

7.Disney a punto croce 53 Nemo in a circleStitcher: Jennifer Urquhart, Glasgow, Scotland
Received

8.Facebook listing Dory - just keep swimmingStitcher: Alison Jeff, Worcester, UK
Received

9.Dumbo from filesStitcher: Gail, Lochgelly, Scotland
Received

10.Simba from LQ files SimbaStitcher: Angie, Belper, UK
Received

11.Buzz Bee Stitcher: Ali, Newcastle upon Tyne, UK
Received

12.Label Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
Received


Squares received

Cross stitch square for Megan D's quilt
Stitched by: Miss Debbie Elkington
Submitted: Oct 2020

Cross stitch square for Megan D's quilt
Stitched by: Diane
Submitted: Oct 2020

Cross stitch square for Megan D's quilt
Stitched by: Jill Smith
Submitted: Sep 2020

Cross stitch square for Megan D's quilt
Stitched by: Seren Senior
Submitted: Nov 2020

Cross stitch square for Megan D's quilt
Stitched by: Julie Edgcumbe
Submitted: Aug 2020

Cross stitch square for Megan D's quilt
Stitched by: Sarah
Submitted: Sep 2020

Cross stitch square for Megan D's quilt
Stitched by: Helen Irwin
Submitted: Oct 2020

Cross stitch square for Megan D's quilt
Stitched by: Jennifer Urquhart
Submitted: Nov 2020

Cross stitch square for Megan D's quilt
Stitched by: Alison Jeff
Submitted: Sep 2020

Cross stitch square for Megan D's quilt
Stitched by: Gail
Submitted: Nov 2020

Cross stitch square for Megan D's quilt
Stitched by: Angie
Submitted: Sep 2020

Cross stitch square for Megan D's quilt
Stitched by: Ali
Submitted: Dec 2020


Card

Card for Megan D
Stitched by: Deborah Desmond Clarke

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