Sean K's quilt   (Quilt Completed)
I had a tear in my eye when Sean's quilt arrived , it is beautiful so so much work and thought had gone in to it. Honestly it's amazing and Sean just loves it, his little brother tried to take it and Sean started getting frustrated. Even the detail of Sean's own car is on it. Just wow
Quilted by: Julie E
Sean was born a normal healthy little boy at term and a good weight. He then at around 2months old struggled with his milk and would just cry all the time. We were told by HV that he had colic and was just a whiny baby!! At 4 months he presented with these awful weird movements that were followed with a scream and his skin began to weep. Doctors told us there was nothing wrong with our baby boy but we knew something wasn't right. We took him to hospital for skin wraps as he now had severe eczema. A neuro doctor told us he suspected these jumps and screams where possibly infantile spasms!! Two days later he had an EEG which confirmed a devastating diagnosis of IS - horrible seizures that had to be treated with a high dose of steroids. He then had an MRI on the 10/01/11. 2 hours after the MRI we were taken into the small room at the end of hospital ward that no parent wants to go to! That's when we were given the diagnosis of bilateral perisylvian polymicrogyria, a brain malformation that happened when I was pregnant. We were told he would never be a normal child and would most likely need help all of his life due to the severity of his PMG and that seizure medication would continue throughout his life also. We felt broken as parents and didn't know where to turn for support or help and how would we tell he 2 big brothers that their little brother was not well and that life as we knew it was going to change forever.