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LoveQuiltsUK - Talia W's quilt

Talia W's quilt    (Quilt currently being assembled)

Born:2019
Illness: Cerebal palsy , cerebal atrophy, microcephaly, dystonia, brain deterioration, severe hearing loss, severe visual impairment etc .

Theme: Disney Specific

Quilt currently being assembled
Photo of Talia W

Theme details

Disney Specific - Frozen, Beauty and the Beast, Finding Dory and Aristocrats



Biography

Talia was born in Blackpool Victoria hospital via emergency c-section at 32+ weeks weighing in at 3 pounds. Her heart and lungs were in a bad shape and she was taken to Preston hospital to be treated. She was on a lot of medications to help her put weight on and grow. She stayed in NICU for over 1 month.

When Talia came home 2 days before Christmas in 2019 she was happy and healthy weighing close to 5 pounds. Everything was going great, she was growing and healthy.

I started noticing a few months after she was born that her head wasn't growing and she was vomiting up all her milk. Then one morning I woke to find her covered in sick. I took her to Walk in and they sent me to the Children's Assessment Unit at Blackpool Victoria. They ran bloods and other tests and it came back that she had acute liver and kidney failure. At around 4 in the afternoon that same day she started having cluster seizures for hours. All the doctors were finding it hard to stop them. The doctor came and spoke to me and said they did a brain scan on Talia and it came back that she had severe brain deterioration. A lot of her brain tissue was missing and he said she probably won't live longer than a week. Staff from Brian House asked me what I wanted for her, my wishes etc. At that time I was broken but I made the decision to sign a DNR and prioritise comfort over prolonging life.

Over the course of the following year Talia had many tests and has been diagnosed with multiple disabilities from severe microcephaly to being lactose intolerant. I had no idea from day one she had any disabilities but I was told she was probably having seizures from the moment she came home.

Talia is now 17 months old and still fighting though everything. We have frequent appointments with OT, hospitals for her eyes and ears as well as other appointments with Brian House Children's Hospice and Portage. Talia has a life expectancy but it's not normal. So it could be in a week or a month when the worst day of our lifes will come.

Talia struggles with everything. She's still like a newborn but she's the most beautiful baby I could have asked for and she has come a very long way since birth and I'm a super proud mummy . My wishes still stand to this day for Talia to have a happy life and future, a life without pain or sadness, just spend every day with a new adventure. Talia will be celebrating her second year in November .



Patterns


1.Stitcher: DRGP Group, UK
Received

2.Stitcher: Heather C, London, UK
Received

3.Stitcher: Sylvia, Clacton, England
Received

4.Stitcher: Maz, S Wales, UK
Received

5.Stitcher: Alison Forsyth, Aberdeen , UK
Received

6.Gaston from filesStitcher: Jodie Balaam, Lawshall, England
Received

7.LQ files Lumiere from Beauty and the BeastStitcher: Paula Dewar, Glasgow, Scotland
Received

8.From LQ Files Dory Just Keep SwimmingStitcher: Kaz Bowen, Wakefield, UK
Received

9.Princess portrait Elsa from filesStitcher: Gail, Lochgelly, Scotland
Received

10.From LQUK files Belle in heart with castleStitcher: Lauren Tandy, Havant, UK
Received

11.LQ files Beauty and the Beast stained glass roseStitcher: Julie Robbins, Bromsgrove , UK
Received

12.Label Stitcher: Jan G, Hull, UK
Received


Squares received

Cross stitch square for Talia W's quilt
Stitched by: Jan G
Submitted: May 2021

Cross stitch square for Talia W's quilt
Stitched by: DRGP Group
Submitted: Dec 2020

Cross stitch square for Talia W's quilt
Stitched by: Heather C
Submitted: Apr 2021

Cross stitch square for Talia W's quilt
Stitched by: Sylvia
Submitted: Apr 2021

Cross stitch square for Talia W's quilt
Stitched by: Maz
Submitted: Apr 2021

Cross stitch square for Talia W's quilt
Stitched by: Alison Forsyth
Submitted: Apr 2021

Cross stitch square for Talia W's quilt
Stitched by: Jodie Balaam
Submitted: May 2021

Cross stitch square for Talia W's quilt
Stitched by: Paula Dewar
Submitted: May 2021

Cross stitch square for Talia W's quilt
Stitched by: Kaz Bowen
Submitted: Jun 2021

Cross stitch square for Talia W's quilt
Stitched by: Gail
Submitted: Aug 2021

Cross stitch square for Talia W's quilt
Stitched by: Lauren Tandy
Submitted: Aug 2021

Cross stitch square for Talia W's quilt
Stitched by: Julie Robbins
Submitted: Jul 2021


Card

Card for Talia W
Stitched by: Jade Kenny

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