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LoveQuiltsUK - Isabel P's quilt

Isabel P's quilt    (Quilt Closed)

Born:2010
Illness: Krabbe Disease

Theme: Fairies and Flamingos

Date opened: 10th Aug 2022
Date closed: 16th Aug 2022
Deadline: 29th Dec 2022

Photo of Isabel P

Theme details

Fairies and Flamingos - Father Christmas on the label would be nice



Child Interests

Isabel loves pale pink.
She watches Ben and Holly and Postman Pat. She loves going in the hydrotherapy pool. She likes feeding ducks.

Isabel loves Father Christmas and would visit him all year round if she could.


Biography

Isabel was a desperately wanted rainbow baby. I had an ectopic pregnancy with emergency surgery, then two years later I miscarried a baby. After that nothing. We bought a puppy, she became my baby as I’d given up hope. Happily I became pregnant again and Isabel was born.

From birth, it became clear that Isabel was not thriving. She didn’t gain weight and struggled to feed. Milestones were not met and she looked very poorly. Isabel had hypotonia and couldn’t lift her head or move. She didn’t babble but she smiled the most beautiful smiles.

Before her first birthday she started having seizures. We spent a lot of time staying in hospitals and making scary ambulance trips. Isabel was diagnosed with epilepsy and autism. She also had hearing loss and was given hearing aids.

Eventually Isabel, with great support from her physiotherapist, learned to walk with a walker. She had a fantastic speech and language therapist and learned some phrases.

We were referred to the 100,000 genome project. Eventually, they had news for us, it was not the news we wanted. Isabel has Krabbe Disease, a life-limiting genetic condition.

Isabel is very well supported by our family, her school and hospice. She is currently a happy girl who is enjoying life. We are making memories and helping Isabel live her best life.



Patterns


1.Stitcher: Jodie Balaam, Lawshall, England
Received

2.Stitcher: Jo, York, UK
Received

3.Passionbrode77.canalblog.com 2 flamingos. 1 wearing shades the other a sunhat.Stitcher: Jenny Elkington, Boston, UK
Received

4.Axebe from Etsy. Flamingo with a tropical landscape.Stitcher: Nicky, Mytchett, UK
In Progress

5.Aliona Ricamo. Only information available Wood fairy: green dress and violet wings. Stitcher: Maria, Torino, Italy
Received

6.Lili of the valley fairy walking blowing a dandelion flower Stitcher: Paula Dewar, Glasgow, Scotland
Received

7.Pale pink fairy from filesStitcher: Emma, Crediton, UK
In Progress

8.Flamingo with rose integrated in feathersStitcher: Ellie, London, UK
Received

9.LOTV May fairy Little fairy wearing a pink dress with flowers Stitcher: Karen Stephenson, Cambridgeshire, UK
In Progress

10.Flamingo on one leg in water DMC free pattern Stitcher: Ann, Billericay, UK
Received

11.Etsy The Stitch Patterns Flamingo with leavesStitcher: Alison, South Gloucestershire, UK
Received

12.Label Stitcher: Sandra, Shefford, England
Received


Squares received

Cross stitch square for Isabel P's quilt
Stitched by: Sandra
Submitted: Aug 2022

Cross stitch square for Isabel P's quilt
Stitched by: Jodie Balaam
Submitted: Jul 2022

Cross stitch square for Isabel P's quilt
Stitched by: Jo
Submitted: Jul 2022

Cross stitch square for Isabel P's quilt
Stitched by: Jenny Elkington
Submitted: Sep 2022

Cross stitch square for Isabel P's quilt
Stitched by: Maria
Submitted: Sep 2022

Cross stitch square for Isabel P's quilt
Stitched by: Paula Dewar
Submitted: Oct 2022

Cross stitch square for Isabel P's quilt
Stitched by: Ellie
Submitted: Sep 2022

Cross stitch square for Isabel P's quilt
Stitched by: Ann
Submitted: Oct 2022

Cross stitch square for Isabel P's quilt
Stitched by: Alison
Submitted: Oct 2022



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