Just before his 3rd birthday Joel was diagnosed with Duchenne Muscular Dystrophy. Duchenne (DMD) is a muscle wasting disease that affects every muscle in the body. The average life expectancy of boys with DMD is 27 but many don’t make it through their teens due to complications, some pass even younger. There is no cure and no treatment so Joel is now following a predetermined path, his muscles in his legs are wasting and he needs the aid of a wheelchair already. By adolescence he’ll be off his feet forever and then other muscles will waste thereafter. He will gradually become paralysed, eventually his heart and lungs will fail and we will lose our Joel cutting his life way too short.
DMD is currently 100% fatal. Words cannot describe how devastated we are that our beautiful son has this disease. Our world was turned upside down, our lives and hopes for Joel changed forever. The only hope for Joel and the thousands of boys that have Duchenne is that researchers have a breakthrough in time. We can do nothing but try and manage the daily symptoms DMD inflicts upon him.