Sienna L's quilt    (Quilt Closed)

Theme details

Giraffes - For the label, please stitch her name in purple. Cute or realistic style please (due to autism) [Note: this excludes mandala, outline, geometric or any other abstract-style pattern]

Child Interests

She LOVES purple, and is a massive fan of anything with giraffes!!! She is OBSESSED!!!
She also loves blue and green! And anything soft feeling. She loves dogs and horses and daisies!!

Biography

Sienna is an 8 year old girl. She was born with a large jaw and no one knew what was wrong. When she was 3, she had a MRI and it come back that she had a very large plexiform tumour twisted around her jaw nerves. Constant and regular scans were needed but ultimately no treatment was available. This condition is called neurofibromatosis type 1, where tumours grow within the nerves of body and are inoperable.

In late 2021. Sienna started being unwell a lot. An MRI showed she had developed a brain tumour which also causes fluid and pressure on the brain. She underwent emergency surgery to fit a shunt, and we’ve been waiting since for more treatment to be approved.

Sienna recently started a 2 year course of a brand new oral chemotherapy drug to help shrink her brain tumour and plexiform tumour in her cheek.

She also has autism and adhd. She uses a wheelchair sometimes due to muscle weakness in her legs. She is also slowly going blind in one eye due an optic nerve glioma appearing just before Christmas.

Patterns

Squares received

Card

Stitched by: Claire Tobias