Thank youTo everybody who was involved in the making of Jaxon’s amazing quilt, words can’t express how grateful I am that he has been to selected to receive something so beautiful and unique. Thank you doesn’t seem nearly enough to express my gratitude but it’s all I have. It arrived last week but Jaxon has been at his dad’s and only returned home yesterday so I wasn’t able to take any pictures until now.
After a turbulent 12 months for Jaxon health wise in which he’s spent over half of that time in hospital and where just days after Christmas, he became so critically unwell with overwhelming sepsis, we almost lost him, this quilt couldn’t have come at a more perfect time. He’s only been home a matter of weeks and thankfully is doing much better.
Jaxon is unable to communicate his likes and dislikes so I’ll explain where the theme of rockets came from.
When Jaxon was born, myself and Jaxon’s dad were friends with a couple. They have a son, he was about 3 or 4 years old at the time. He was really excited throughout my pregnancy. When Jaxon was born they had to tell him in an age appropriate way that he was very poorly and he might have to go and live in the sky. His response (as children often speak so innocently) was simply “how can he go and live in the sky he doesn’t have a rocket?” For reasons I can’t really explain, shortly after this conversation took place, Jaxon’s rocket became a thing and we’ve affectionately attached the theme of rockets to Jaxon ever since.
This quilt is so very special to us and it will be appreciated, admired and loved forever.
Once again, thank you so much
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BiographyAfter a relatively uncomplicated pregnancy, Jaxon, for reasons still unknown to us, suffered a significant lack of oxygen at birth after a crash caesarean section following a brief period of reduced fetal movement that led to a prolonged resuscitation.
He has spent a significant amount of his life in hospital due to numerous severe chest infections and uncontrolled episodes of dystonia leading him into crisis.
Jaxon was diagnosed with Infantile Spasms in 2019 which then developed into a more complex, difficult to treat Epilepsy. Jaxon can’t walk or talk. He is fully tube fed and is entirely reliant on those around him for every aspect of his care.
This year has been particularly hard as Jaxon spent four months in hospital which included him being intubated in intensive care twice. He became so poorly that doctors were at times, concerned he would not recover but in true Jaxon style he bounced back in his own time and despite the fact he now relies on bipap overnight to support his breathing, he is doing very well and even goes to school.
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