Henry M's quilt    (Quilt Completed)

Thank you

Coming soon...

Finished photos

Individual squares

Card

Stitched by: Jill Smith

Biography

Henry is 5 years old. He is a happy and smiley boy who is full of personality. He loves being around other people, company and interaction are his favourite. He loves to chat and listen to funny sounds and he loves swimming and reading Dear Zoo and the Gruffalo. Most of all he loves a cuddle and a bit of rough of tumble with his brothers.

Henry is an identical twin. Following a premature birth at 29+5 weeks gestation Henry sustained a severe brain injury and spent 14 weeks in neonatal care. During his hospital stay he spent time at 4 different hospitals and needed surgery for a hernia repair. At 10 months old Henry was diagnosed with quadriplegic cerebral palsy and a severe vision impairment. Henry also has hearing loss requiring bilateral hearing aids and is partially fed by feeding tube. In 2019 Henry was diagnosed with epilepsy which is now controlled by medication following 2 years on the ketogenic diet.

Henry is now awaiting a surgery date for a baclofen pump to help with Henry's muscle spasticity. Henry also has regular botulinum toxin injections every 6 months to help with muscle spasticity.

Henry requires daily therapies, specialist equipment and 1:1 adult support 24/7.