BiographyEllis was born in 2022 with nothing detected on scans or tests, until he became unwell & we were admitted when he was 10 days old.
Ellis has had multiple tests, scans & treatments until we received the diagnosis in July. The diagnosis is extremely rare & there are only 65 cases reported worldwide.
Ellis has multiple challenges - he has hypotonia, severe epilepsy, infantile spasms & a visual impairment. Ellis is the happiest baby ever. He is such a loving & smiling sweetheart, even after such a really tough year with multiple hospital admissions & an intensive care admission.
|