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LoveQuiltsUK - Soren's quilt

Soren's quilt    (Quilt Closed)

Born:2016
Illness: KLF Associated Genetic Disorder

Theme: Music and rainbows

Date opened: 10th Jul 2024
Date closed: 14th Jul 2024
Deadline: 26th Nov 2024

Photo of Soren

Theme details

Music and rainbows - Music and rainbows, primary colours, orange and yellows, high contrast, and large (rainbow coloured things are fine)

Some birds on the label (Song birds are best - recognisably British ones like blue tit or European robin etc)



Child Interests

Soren likes bright colours particularly red, orange and yellow (primary colours and high contrast shapes and patterns).
He likes stars, rainbows and animals or anything related to music.
He likes high contrast such as a black outline pictures against a yellow background to help him to see the picture.


Biography

Soren experienced chronic breathing difficulties and low tone at birth. He was also found to have swallowing difficulties, dramatic and sudden drops in oxygen and airway difficulties known as laryngomalacia. An ultrasound in neonatal discovered a significant malformation in the corpus callosum of his brain. Soren also had an enlarged liver and spleen as well as low tone and weakness in his muscles. He also began to have intermittent episodes of high tone in his muscles known as dystonia.

He experienced poor health and frequent chest infections as a baby and also went on to develop epileptic seizures at approximately 11 months old, known as infantile spasm (West Syndrome). This resulted in a loss of development and seizures that would stop him breathing. At around 17 months he went on to have serious breathing difficulties that led to acute infection and emergency ventilation. During this acute infection he lost part of his bowel during life saving surgery and now has an ileostomy and uses a stoma bag.

In October 2022 genetics discovered that Soren has a very rare variation on KLF7 gene. Soren is one of five children in the world documented as having this.

Soren is now 8. He continues to experience complex medical and neuro-developmental difficulties as well as high risk episodes of airway dystonia. He is a happy and joyful child and loves music.



Patterns


1.Motherbeedesigns Music star 3Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
In Progress

2.Rainbow Maypole by Climbing Goat designs on Etsy Stitcher: Val Gilbert, Coningsby , UK
In Progress

3.Cross stitch pattern music heart musical notes staff treble clef bass rainbow love counted crossstitch patterns/Instant Download PDF Etsy Rainbow coloured music notes in heart shapeStitcher: Jo, Norwich, England
In Progress

4.LQ I can sing a rainbow by Deborah Clarke The words I can sing a rainbow written in rainbow cours and music notes. May try and adapt pattern to get a rainbow inStitcher: Gabriele Pearson, Cromarty, UK
In Progress

5.Https://www.etsy.com/uk/listing/1359172890/music-rainbow-cross-stitch-pattern-pdf Rainbow with music notes etc. Will stitch in rainbow coloursStitcher: Helen Cheape, Sunderland, UK
In Progress

6.Https://www.etsy.com/uk/shop/CrossStitchPaterns Rainbow , will add musical notesStitcher: Heather, Littleborough, England
In Progress

7.Climbing Goats Rainbow with cloud in front and sun in backStitcher: Jeanne, Pennsylvania, USA
In Progress
https://www.climbinggoat.co.uk/products/rainbow-cr...

8.Headphones with rainbow colour beats between the ear pieces of etsyStitcher: Jodie Balaam, Lawshall, England
In Progress

9.Little boy running with rainbow coloured balloons. Climbing Goats.Stitcher: Leanda Vickers, Oldham , England
In Progress

10.Heart of Music by Climbing Goat Designs Treble CLef and musical notes in ranibow coloursStitcher: Diana Lettice, Spalding, UK
In Progress
https://www.climbinggoat.co.uk/products/heart-of-m...

11.Climbing Goat Designs Music Notes HeartStitcher: Eileen, Newcastle, UK
In Progress

12.Label Stitcher: Jan G, Hull, UK
In Progress


Squares received

None yet. (Quilt opened on 10th Jul 2024)


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