George T's quilt (Quilt Closed) |
Born: | 2017 |
Illness: | Chromosome 3p26.3 Deletion
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Theme: TV Characters
Date opened: 21st Aug 2024 Date closed: 3rd Sep 2024 Deadline: 29th Dec 2024
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Theme detailsTV Characters - Children's TV Characters
Julia Donaldson characters (Room on the Broom, Zog, The Gruffalo, The Gruffalo's Child, Smeds & the Smoos, Superworm)are a favourite. Also (Shaun the Sheep, Teletubbies, Postman Pat, Sesame Street eg Elmo, Mr Tumble, Thomas the Tank Engine, Mickey Mouse & Friends.
Please prioritise Julia Donaldson and the CBeebies character and fill up with Mickey/Thomas if necessary
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Child InterestsFavourite Colour: Green
Interests: Children's TV Characters (Shaun the Sheep, Teletubbies, Postman Pat, Sesame Street, Mr Tumble, Love Monster, Bluey, PAW Patrol, Pingu, Numberblocks, Clangers, In the Night Garden, Mr Maker Shapes), Julia Donaldson Characters (Room on the Broom, Zog, The Gruffalo, The Gruffalo's Child, Smeds & the Smoos, Superworm), Disney Pixar, Thomas the Tank Engine, Mickey Mouse & Friends.
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Biography
George was born at 42 weeks following induction at our local hospital after a pretty straightforward pregnancy. The birth was long, but there were no complications. When he was first born, Doctors noted that he had bilateral talipes and he was unable to breastfeed.
Within a couple of weeks of his birth, George was losing weight and had developed severe reflux; he was put onto medication to try and help with this.
From birth, George struggled to meet his expected developmental milestones and at his 18 month review, he was referred to the paediatrician and put under assessment for Autism, ADHD and Developmental Delay. As part of this process, George underwent blood tests which confirmed his Genetic Disorder of Chromosome 3p26.3 deletion. He was also diagnosed with an unsafe swallow and placed under eating & drinking specialists.
Since he's been 2.5 years old, George has had regular Speech and language therapy, occupational therapy and physiotherapy. He wears bilateral AFO splints to support his feet and ankles.
He takes regular medication to regulate his bowels, he remains incontinent and has low iron and struggles to maintain his blood levels correctly. More recently, George has been diagnosed with sight impairment and is now required to wear strong prescription glasses 24/7.
George is at least 3.5 years developmentally behind his peers and has delays in all areas of his development.
Due to the rarity of his Genetic Condition, and the other complications George has we are unsure what the future holds for him. George is becoming more complex as he grows, and he is struggling with more co-morbidities with his conditions and has a lot of care needs too.
Despite all of this, George has come out fighting and is a happy and loving boy who enjoys his special interests and likes to be as active as possible! He starts every day with a smile and is always laughing.
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Patterns
1. | | Stitcher:
Ann, Billericay, UK
Received
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2. | | Stitcher:
Lilian, Alleroed, Denmark
Received
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3. | | Stitcher:
Tina, Warboys, UK
Received
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4. | | Stitcher:
Leanne Malcolmson, Romsey, UK
Received
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5. | Julia Donaldson. From LQ files Room on the broom | Stitcher:
Jan G, Hull, UK
Received
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6. | Superworm | Stitcher:
Sandra, Shefford, England
Received
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7. | Cross Stitcher Magazine Gruffalo book cover | Stitcher:
Ellie, London, UK
In Progress
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8. | Own design Teletubbies | Stitcher:
Elizabeth, Shipley, UK
Received
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9. | LQ files Zog standing | Stitcher:
C McDonald, Altrincham, UK
In Progress
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10. | LQ files Gruffalo in a green circle | Stitcher:
Lindsay, Northwich, UK
In Progress
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11. | Smeds and smoos | Stitcher:
Pippa, Surrey, UK
In Progress
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12. | Label |
Stitcher: Jodie Balaam, Lawshall, England Received |
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Squares received
Stitched by:
Jodie Balaam
Submitted: Sep 2024
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Stitched by:
Ann
Submitted: Aug 2022
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Stitched by:
Lilian
Submitted: Jun 2023
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Stitched by:
Tina
Submitted: Jul 2023
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Stitched by:
Leanne Malcolmson
Submitted: Jul 2024
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Stitched by:
Jan G
Submitted: Sep 2024
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Stitched by:
Sandra
Submitted: Sep 2024
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Stitched by:
Elizabeth
Submitted: Oct 2024
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Card
Stitched by: Sandra |
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