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LoveQuiltsUK - Oliver W's quilt

Oliver W's quilt    (Quilt Closed)

Born:2022
Illness: Cri du chat syndrome and Beckwith-Wiedemann syndrome

Theme: Peter Rabbit and friends

Date opened: 28th Aug 2024
Date closed: 15th Sep 2024
Deadline: 26th Jan 2025

Photo of Oliver W

Child Interests

Oliver absolutely loves Peter rabbit and the characters within the programme.


Biography

During my pregnancy scans were showing Oliver was a big baby. After further testing it was confirmed Oliver had cri du chat and Beckwith-Wiedemann syndrome. Both are rare but he would be the first child known to have both together and I was advised to terminate as he would be deaf, blind, never walk, never talk or be stillborn.

Beckwith-Wiedemann is an overgrowth syndrome which also causes large tongues, hemihypertrophy, undescended testes, and childhood cancer.
Cri du chat is an undergrowth syndrome which causes developmental issues, small jaws and faces.

I continued with the pregnancy and Oliver was born at 36 weeks weighing 11lb and spent 4 weeks in nicu. He was never able to manage a bottle so was NG fed from birth. At 6 months old he was diagnosed with obstructive sleep apnoea and central apnoea meaning Oliver needs to be on oxygen during nap times and overnight. He was also in and out of hospital for recurring chest infections.

On his 1st birthday he had surgery to have a gastrostomy fitted and his undescended testes to be corrected as a 2 part surgery. Oliver is such a happy and content 2 year old who can see with glasses, he has passed his hearing test, he is non verbal but is able to express his needs through facial expressions and behaviours.


Just after Oliver`s 2nd birthday we got the news that Oliver had a Wilms tumour so he started chemotherapy straight away then he had his full kidney removed in June 2024. Since then he has caught several infections resulting in long stays in hospital and several surgeries.



Patterns


1.Stitcher: Doris, Aberdeen, UK
Received

2.Stitcher: Georgina, Chertsey, UK
Received

3.Jemima Puddleduck from the Peter Rabbit 2021 calendar Stitcher: Sandra, Shefford, England
Received

4.Mrs Tiggy-Winkle - WOXS CalendarStitcher: Leanda Vickers, Oldham , England
Received

5.Designs to celebrate 100 years of peter rabbit from old cross stitcher magazine Peter rabbit and Tom kittenStitcher: Sarah, St. Albans, UK
Received

6.Peter Rabbit Calendar Mummy rabbit cuddling Peter Stitcher: Nicola, St Albans, UK
Received

7.Peter Rabbit sat on a book from WOXS magazine Feb 2024Stitcher: Val Gilbert, Coningsby , UK
Received

8.Via Hatchette not realised yet but will be when square is due Autumn Timmy Tiptoes patternStitcher: Gemma McKnight, Southampton , England
In Progress

9.More story book favourites Tom KittenStitcher: Pauline, Broughton, UK
Received

10.Anchor JC15 Advice for PeterStitcher: Linda Cropper, Atherstone, England
In Progress

11.From Peter Rabbit calendar Squirrel NutkinStitcher: Marilyn Foyle, Biggleswade, UK
Received

12.Label Stitcher: Jan G, Hull, UK
Received


Squares received

Cross stitch square for Oliver W's quilt
Stitched by: Jan G
Submitted: Oct 2024

Cross stitch square for Oliver W's quilt
Stitched by: Doris
Submitted: May 2022

Cross stitch square for Oliver W's quilt
Stitched by: Georgina
Submitted: Jan 2024

Cross stitch square for Oliver W's quilt
Stitched by: Sandra
Submitted: Oct 2024

Cross stitch square for Oliver W's quilt
Stitched by: Leanda Vickers
Submitted: Nov 2024

Cross stitch square for Oliver W's quilt
Stitched by: Sarah
Submitted: Nov 2024

Cross stitch square for Oliver W's quilt
Stitched by: Nicola
Submitted: Sep 2024

Cross stitch square for Oliver W's quilt
Stitched by: Val Gilbert
Submitted: Sep 2024

Cross stitch square for Oliver W's quilt
Stitched by: Pauline
Submitted: Nov 2024

Cross stitch square for Oliver W's quilt
Stitched by: Marilyn Foyle
Submitted: Nov 2024



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