Seren's quilt    (Quilt Completed)

Thank you

Coming soon...

Finished photos

Individual squares

Card

Stitched by: Nicola Bailey

Biography

Seren was born with a large port wine stain on her face which immediately raised concerns. After a swift referral to Great Ormond Street, she was diagnosed with the rare congenital disease of Sturge Weber Syndrome. Like all syndromes there is a broad spectrum and we were told we need to wait and see although her disease is bilateral and on the whole, children don't fare as well.

Seren was developing as normal until she had her first seizure aged 6 months; she was in constant seizure state for 6 hours. This resulted in irreversible brain damage and skills regression which she has to this day not managed to regain.

She has in her short life experienced intensive care a number of times that I count on both my hands, and is now significantly affected. She is aged 3 and 100% dependant on a care giver to do absolutely everything including grasping a toy.

Our world has become so small but we try to do our best ensuring that she has opportunity and access to equipment that will improve her quality of life.