Thank you so, so much for sending Hanna a quilt. It arrived today and it is absolutely fabulous. The needlecraft is so professional and the completed quilt is second to none :)
Hanna (and her little sister Lotty) think it is wonderful and the first thing they did after reading where all the cross stitches had come from is to snuggle under it together!!
You have made not one but 2 little girls very happy today-keep up the fantastic work-you and all the stitchers are stars.
Hanna was born with the condition called VACTERL. All the letters stand for something that is associated with the disease.
We were not aware that Hanna had the condition before she was born, so it was a big shock to us.
The midwife gave Hanna her first bottle but she choked & turned blue so the resucitation team were called. Immediate investigation found that Hanna's oesophagus coming from her stomach was joined to her trachea & her oesophagus from her throat was a blind end. This is called Oesophagus Fistula & Oesophagus Atresiai.
At sixteen hours old she had to have a life saving operation to join the oesophagus back up, which thankfully was a success (although reflux is severe).
Subsequent investigations found Hanna had a flat trachea, a TOF cough (often compared to a seal or dog barking), extra ribs (V= Vertabrae), anal stenosis (A= anal), Ventricular Septal Defect (VSD) (C= Cardiac), Unilateral renal agenesis (only one kidney) (R= renal), malformation of the right thumb (L= Limb).
Hanna had surgery at 3 years old to improve the function of her thumb.
Hanna has many hospital visits each month as with all the different organs involved she is looked after by a large team of consultants.
Hanna also suffers from Asthma and has many chest infections and lots of missed school and misses her friends alot.
Written by Fiona (Hanna's mum)