Ethan M's quilt    (Quilt Completed)

Thank you

Ethan loves his quilt so much thank you to everyone who took time to make this so special for him it’s amazing so much hard work has gone into it and we really appreciate it thank you

Finished photos

Individual squares

Card

Stitched by: Nicola Hargreaves

Biography

Ethan was born two days before his due day, labour was fine but he didn't feed for the first 24 hours and we were were in hospital for a week. Once home things didn't improve, he took 2 1/2 hours to drink a bottle of milk and was screaming in pain. His first hospital visit was in January 2015 and he was diagnosed with cows milk allergy and reflux and his milk was changed but still no improvement. He was back in hospital again in February 2015 when a different doctor noticed he had poor head control, he was sent for an MRI scan which showed he hadn't developed a corpus callosum. With still no improvement with feeding it was decided to start weaning early but that didn't work either so it was decided to fit an NG tube. In July 2015 he was given a fundoplication and gastrostomy. He has since been given medication for dystonic spasms and he aspirates but can still have tiny taste for quality of life.