Hello to all the wonderful stitchers of Love Quilts!
Ami-Grace received the MOST beautiful tiger & vehicle quilt recently. I am so sorry this post was delayed, she is spending a lot of time in and out of hospital at the moment (hence the half painted lounge!) due to having a blood clot between her brain and skull. Ami-Grace could need emergency surgery any day but weâ€™re really hoping things will resolve under the close observation of the neurosurgeons, without the need for more brain surgeries (she had 7 last year!). Life is currently being lived on a tightrope so any moments of joy are absolutely treasured. This quilt has already brought untold joy.
Itâ€™s a work of art. Itâ€™s perfect. How you manage to create such beautiful quilts is beyond me, I only wish I was this talented! It sums her up perfectly. The back of it is even lined with vehicles! Itâ€™s just so her!
She loves it so much, it was difficult to get a photo where sheâ€™s not pointing at a square!
Here is Ami-Grace with her best friend in the whole world, Christy, enjoying the fruits of your labour.
Weâ€™d like to say an enormous THANK YOU for your hard work, youâ€™ve definitely captured her personality to create something that will definitely take the edge off so many hospital stays. It couldnâ€™t be more suited to her, my brave little tiger Cub.
Sending a huge hug to every stitcher who has shown my precious girl love by handcrafting this beauty. Youâ€™re all incredible. I mean, even the card has a square on it!
Treasured forever. Thank you.
All our love, Grace & Ami-Grace
Ami-Grace was born at 25weeks gestation. An extremely premature baby, she had a brain bleed at 24hours old and was given a 10% chance of survival. Ami-Grace miraculously survived but it wasnâ€™t without itâ€™s struggles. She spent six months in neonatal intensive care and suffered many complications, including bowel surgery and eye surgery.
Ami-Grace came home on oxygen and continuous tube feeds. She was a very poorly baby, I was warned sheâ€™d end up back in hospital, that things would be tough, that nobody knew what sheâ€™d be capable of.
As the years passed, Ami-Grace coined the nickname â€˜Cubâ€™ because she fought like a tiger, and despite the severity of her disabilities and the surgeries, procedures and torture she endured, she was such a happy child. Even during regular admissions to hospital for pneumonia, as soon as she felt well enough sheâ€™d be laughing!
She learned to smile, learned to sit and at aged 7 even learned to walk! She was a medical marvel, a testament to strength and determination. With a smile that could light up a room and the tenacity of a tiger, she took on the world and won.
A couple of years ago, things changed. Cub started losing skills. The epilepsy she'd had when she was little got much worse, she lost the ability to walk and was showing signs of pain and distress. Nobody could figure out what was wrong. As her medication went up and life got more and more scary, I grew frantic.
Eventually, one of her doctors suggested she have a brain MRI scan to see if there was a problem. I expected the scan would be clear, we all did I think. It was January this year the results came in. Cub had â€˜active hydrocephalusâ€™ (fluid on the brain) that had been there for a long time. We were all shocked, Cub must have been in incredible pain, it was a miracle she was alive.
In March of this year she underwent brain surgery to place a shunt, this drains the fluid from her brain into her abdomen, this reducing the pressure in her head. Shunts are not without their problems, Cubâ€™s already sensitive organs are taking some getting used to it, complications can be life threatening so we live our lives day by day.
Some days her smiles are like they used to be and they are the most wonderful days.
Right now weâ€™re concentrating on living happily, even if it isnâ€™t ever after.