Rory was born 1st January with meconium ileus which is a blocked and perforated bowel. He was operated on 24 hours after birth where some bowel was removed and re-sectioned. Due to this, and genetic testing, Rory was diagnosed with cystic fibrosis. He immediately started medications because his pancreas doesn't produce enzymes to break down food. He struggled to gain weight and had multiple bowel blockages in his first year of life.
At age 2 Rory was diagnosed with a pseudonomas lung infection which meant he had to start nebuliser treatments. Shortly afterwards he was diagnosed with CF liver disease which needed more medication. Even a common cold can cause life threatening complications for a child with CF.
Rory has regular hospital visits with scans, x-rays, bloods, physio etc. He currently has 32 tablets and 3 nebulisers per day just to stay well. He endures 2-3 hours of physio and medication on a daily basis which increase with illness.
Rory's sensory processing disorder meant he was delayed with speech. He struggles with separation anxiety, wearing clothes and agoraphobia. Due to these struggles he hasn't been able to make any strong friendships with children his own age. He has a very strong attachment to blankets and fabrics so the quilt will bring him comfort and security as he goes through his challenges.