Love Quilts on Facebook

Join us
on Facebook

Love Quilts on Twitter

Follow us
on Twitter

RSS
LoveQuiltsUK - Caleb P's quilt

Caleb P's quilt    (Quilt currently being assembled)

Born:2017
Illness: Down's Syndrome and Lennox-Gastaut Syndrome

Theme: Cars

Quilt currently being assembled
Photo of Caleb P

Theme details

Cars - Especially Lightening McQueen and other Cars characters, and any cars such as race cars etc.



Biography

Caleb was a planned home water birth.
As soon as he was born I knew he was different to his brother and sister.
I knew he had Down's Syndrome. Having raised my concerns I was reassured that he was fine but 5weeks later after a blood test it was confirmed he had trisomy 21 - Down's Syndrome.

He thrived until 5months of age where he began having Infantile spasms. Despite many treatments they didn't stop.

At 8months old he spent months in hospital with respiratory issues, he was found to have central sleep apnoea and an unsafe swallow.

He was eventually discharged home on 24hr oxygen, overnight CPAP and a nasogastric feeding tube.

The infantile spasms evolved and he had other kinds of seizures, his infantile spasms became West Syndrome.

He got stronger and weaned onto a mashed diet, his lungs grew stronger and he no longer needed oxygen.

Having tried more medications and 18months of a ketogenic diet and further investigations- EEGs and MRIs, Caleb was diagnosed with Lennox-Gastaut Syndrome.
He stopped the diet as it wasn't effective and with it he managed to lose the nasogastric tube.

In January 2021 Caleb had Brain surgery - Corpus Callosotomy to help with the drop seizures.

Caleb has recovered very well, he still has seizures but they are much less than before.



Patterns


1.Meretes’s pattern from the files Lightning mcqueenStitcher: Ruth Horn, Co Durham, UK
Received

2.Red sports car front facing Stitcher: Nicola, Elland, UK
Received

3.Rusty the tow truck from the cars movieStitcher: Sylvia, Clacton, England
Received

4.Ferrari Testarozza - Pat Brown designStitcher: Alison, Ormskirk, UK
Received

5.Climbing Goat Designs. Silhouette of racing car. Stitcher: Diana, Sussex, UK
Received

6.Own design Sally Carrera from Disney CarsStitcher: C McDonald, Altrincham, UK
Received

7.My own design from the files - Lotus 7Stitcher: Pat Brown, Warminster, England
Received

8.From LQ Fles Bugatti chiron Stitcher: Kaz Bowen, Wakefield, UK
Received

9.Red - the fire truck character from CarsStitcher: Emma Swift, Aberdeen, UK
Received

10.From LQ files Set of 6 carsStitcher: Lindsay, Northwich, UK
Received

11.Fillmore from my stash Fillmore from CarsStitcher: Heather, Littleborough, England
Received

12.Label Stitcher: Diane, Middlesex, UK
Received


Squares received

Cross stitch square for Caleb P's quilt
Stitched by: Diane
Submitted: May 2021

Cross stitch square for Caleb P's quilt
Stitched by: Ruth Horn
Submitted: Apr 2021

Cross stitch square for Caleb P's quilt
Stitched by: Nicola
Submitted: Apr 2021

Cross stitch square for Caleb P's quilt
Stitched by: Sylvia
Submitted: Apr 2021

Cross stitch square for Caleb P's quilt
Stitched by: Alison
Submitted: Apr 2021

Cross stitch square for Caleb P's quilt
Stitched by: Diana
Submitted: Apr 2021

Cross stitch square for Caleb P's quilt
Stitched by: C McDonald
Submitted: Apr 2021

Cross stitch square for Caleb P's quilt
Stitched by: Pat Brown
Submitted: Apr 2021

Cross stitch square for Caleb P's quilt
Stitched by: Kaz Bowen
Submitted: Apr 2021

Cross stitch square for Caleb P's quilt
Stitched by: Emma Swift
Submitted: Jun 2021

Cross stitch square for Caleb P's quilt
Stitched by: Lindsay
Submitted: May 2021

Cross stitch square for Caleb P's quilt
Stitched by: Heather
Submitted: Jun 2021


Card

Card for Caleb P
Stitched by: Jodie Balaam

Back to home