Natasha F's quilt   (Quilt Completed)
|Illness:|| Noonan Syndrome, PHP Type 1A, IUGR/SGA/RUSSEL-SILVER SYNDROME
Theme: Dogs and puppies
Quilt delivered: 5th Sep 2021
Thank you so much for the quilt. Natasha loves it so much!
It made Natasha's day, especially after a really hard first day at school.
We love everything about the quilt, it's amazing.
Thank you for the card, Natasha doesn't even know what to say.
Lots of love from us.
Justyna and Natasha xxx
Stitched by: Ruth Horn
Natasha stopped growing in my womb. She was born very small, weighing only 1310g at 35 weeks and 5 days by elective C-section.
After birth she had to be intubated and transferred to more specialised hospital.
For 5 weeks she had been fighting for life as doctors couldn't wean her off the ventilator.
Finally she was transferred to Great Ormond Street Hospital and quickly diagnosed with heart condition (TPVD) and underwent open heart surgery. She came home after 3 months in hospitals as a miracle child.
We couldn't get any genetic diagnosis for a long time. Natasha's physical features do not match, as there are few, so it was difficult to find out why she wasn't growing.
But finally thanks to 1000000 genome project and one specific feature, Natasha has been diagnosed with two genetic syndromes and one clinical. She's stopped growing already and is only 140 cm tall.
She has learning disabilities, anxiety, panic attacks and anger issues and has some autistic traits.
She struggles a lot but she is a fighter. Pure miracle in this world.