BiographyStanley was aged 6 when diagnosed. He started getting headaches that slowly progressed and had what I described as absence seizures. The GP would only diagnose over the phone and would not see Stanley or the video footage and diagnosed migraines.
We took him to A&E on 8th December. We spent a long time waiting in a cubicle as Stanley was light sensitive. Whilst in there he had an episode that would accompany the head pain, I called for help and then it all happened so fast. He had 2 MRIs and we were told he had a tumour and fluid on his brain that was critical. We were blue lighted to GOSH.
When there he had more tests and surgery the following morning to drain fluid from his brain. The following day he had a 14 hour surgery to have the tumour removed. Sadly not all of the tumour could be safely removed.
Stanley had to relearn almost everything, walking, talking, sitting, standing, swallowing and eating and drinking. To this day he is still learning to read and write.
He has undergone multiple treatments including radiotherapy, proton beam therapy and many chemotherapies. He has relapsed many times and hasn't had much of a break from any treatment. He is now on palliative treatment to allow him more time.
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