Grady-Finn was born at 37 weeks by emergency c/section due to him being in distress. He had stopped growing while I was carrying him. We are not sure at what point this was. He was 3lb 10oz at birth so he stayed in scbu for two and a half weeks due to small weight but there didn't seem to be any other problems. Around 4/5 months I noticed Grady-Finn wasn't doing things he should have been doing so I mentioned this to my health visitor. We were then referred to a consultant.
What followed was a mountain of tests, xrays etc. Grady-Finn then started to suffer with really bad chest infections which always resulted into going in hospital. We later found out that he had severe asthma which has been a constant problem for him.
When Grady-Finn was about 18 months it was quite clear he was very behind with his milestones. He could not sit up, roll over, crawl etc. We were later told that various specialist, doctors, geneticists couldn't give us a diagnosis as to what was wrong with Grady-Finn. They were completely baffled. However they did tell us that it was unlikely that he would ever walk, talk etc.
As any parent will know to be told this is absolutely devastating. Professionals now describe him as having global developmental delay and quadriplegic cerebral palsy because they said he could go through his life never having a diagnosis. Grady-Finn has been through so much in his life and spent so much time in hospital with frequent chest infections. Even when he's being prodded and poked he just let's you do what you have to do. He's suffered so much pain and has been scared so much through severe asthma attacks and cardiac arrests.
Even though he's been through all this he still smiles through it all. Grady-Finn cannot talk but his smile says a thousand words. He is MY absolute HERO.