Luke was born perfect in every way, but at 3 days old suffered an extreme hypoglycaemic attack which left him with brain damage in his visual centres. He nevertheless met all of his milestones until he was 5 months old. He was diagnosed first with a visual impairment and then he began to suffer seizures at 6 months old which was subsequently diagnosed as West Syndrome, a rare form of epilepsy. This has progressed to the intractable form of epilepsy he suffers from now, which his neurologist agrees is likely to be Lennox Gastaut Syndrome.
In September 2012, Luke had surgery to implant a vagal nerve stimulator (VNS) to try and combat some of his seizure activity. Sadly this has not proved to be as effective as we hoped, and he currently also has to take both Epilim and Keppra alongside the VNS.
Luke is completely non verbal, and has limited awareness of his surroundings, as well as some degree of tactile defensiveness, but has always loved to play with fabrics of different textures, which is why a quilt will be so special for him. He is a joy to be around and is my constant inspiration.