BiographyTaylor's older brother has Cystic Fibrosis and so, during the pregnancy, we had additional scans and tests and unfortunately these showed that Taylor also had the condition.
Once Taylor was born, he was started on a daily regime of medication and physiotherapy (banging on his chest and encouraging him to blow through a PEP, designed to inflate his lungs). All of this treatment is designed to manage the symptoms of Cystic Fibrosis - there is no cure.
When Taylor was very young, he was extremely underweight and for nearly two months, he was kept in hospital where he needed to be fed via an NG tube through his nose. Taylor also underwent several operations, one of which inserted a permanent surgical implant in his chest to help in the delivery of IV antibiotics. When Taylor was about 2 years old, this implant became infected and he had to undergo another operation to have it removed.
At the moment, Taylor is quite healthy but Cystic Fibrosis is incurable and over time, Taylor's symptoms will in all likelihood become worse, to the point where he may need oxygen, frequent hospital admissions and possibly a double lung transplant operation.
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