From the minute Aran was born he was a challenging child. He rarely slept and needed to be held constantly. He grew into an extremely hyperactive and boisterous child but no diagnosis as I was told he was just being a boy. When Aran was 8 he had his first tonic clonic seizure during the night. the scariest thing to deal with I feel. A diagnosis of epilepsy was given and so began a rollercoaster journey. Aran's epilepsy has proven difficult to control and many meds have been tried. He's gone through some horrible side effects and allergies to meds that have resulted in hospitalization. A year ago Aran's epilepsy worsened and he now has prolonged seizures that require rescue medication. Through it all, I have been amazed at Aran's strength and courage.
Since the start of his epilepsy journey, Aran has regressed in skills, cognitive ability and behaviour. Life is very tough for us a family and diagnoses of adhd, autism and dyspraxia and spd soon followed. After a disastrous time in mainstream school, Aran now attends a special school which has been fantastic for him.
Just when I thought nothing more could go wrong Aran started losing appetite and weight and was constantly fatigued. This has led to a diagnosis of adrenal insufficiency, which is rare but can be life threatening. This has meant more medication for him both daily and emergency but he still gives his all every day, fighting through the constant fatigue. He's my hero.