Kaiya was diagnosed with Cystic Fibrosis at about 4 weeks old. Her first hospital admission was about a week later, she went in with a chest infection and stopped drinking and ended up with an nasel gastric tube placed. After that she was in and out of hospital for the 1st couple of years due to chest infections usually in for 2 weeks IV's at a time with courses of oral antibiotics in between. Kaiya was reliant on ng tube feeds after her 1st addmission till about a year and half ago, when she started drinking small amounts of fluids and eating solids. She still has top up feeds through a gastronomy button in her tummy, this is to help her maintain a healthy weight. She is also intolerant to milk since she was a baby and this year gluten. She has daily medication to try to keep on top of her condition including physio.
She is a very lively happy child but still at present is on oral antibiotics monthly as well as preventive antibiotics. She also now has a portacath for her IV antibiotics.