Malachi L's quilt   (Quilt Completed)
Quilt has arrived and it is beautiful. Thanks so so much x
Quilted by: Gaynor
Malachi was born at 34 weeks due to complications with myself (Mum) in pregnancy. He was born healthy and a good weight 5lb 4 oz and he spent just 2 weeks in special care. At 6 weeks old (and on his original due date) he became seriously ill, he had a chest infection (RSV) and it overpowered him. He was rushed from GP to hospital on oxygen in an ambulance and then put on HDU ward where he stopped breathing several times. Arrangements were made to take him to Bristol Childrens hospital but he was unstable to be moved at first and he had to be intubated on adult ICU and his blood pressure stabilised before he could be transferred as it was very low. Once at Bristol he remained in PICU for 9 days. During this time we discovered that his brain had not received enough blood and oxygen on the day of the emergency and so he had been left with significant damage to his brain. The prognosis was very grim. However, Malachi has proved that prognosis incorrect and is far more able then they ever thought he would be. He is however still quite affected. He suffers with seizures, his sight is impaired, his movement is severely affected and he is very delayed for his age. He has to take lots of medication, he cannot eat properly only puree and mainly gets his nutrition from his specialist milk which he drinks from a bottle still age 3. His whole system struggle to do things "normally" and so digesting food, bowel movements and sleep are all aided by medication. He lives under the threat of seizures. He cannot walk or kneel or stand. His left arm doesn't really work at all. All of his other limbs and trunk are affected. he uses specialist equipment for everything from buggy to bath lift. He has managed to learn to talk and this is the best thing ever!!!