At two days old, Jacob was rushed to Kings College hospital with suspected blocked Bowel.
We're at day 6 after blood tests amongst others confirmed he had Cystic Fibrosis.
4 months later, he had his first course of IV antibiotics. These are always a minimum of two weeks. He had a really rough year and had to have surgery at 4 months also for a Hickman line, then again at 10 months for a gastrostomy button and a port a cath, as he was failing to thrive and needing more iv antibiotics and over night feeds.
With each chest infection brings more ivs. He is severely speech delayed and had delayed development. He attends a special school and has to use a voice aid and sign language for communication.
There is no cure for Cystic Fibrosis and he is currently on iv antibiotics for a chest infection.
We have no idea if he will ever talk or live a normal life.