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LoveQuiltsUK - Reuben B's quilt

Reuben B's quilt    (Quilt Closed)

Born:2011
Illness: Tracheo-oesophageal fustula / with atresia

Theme: Trains

Date opened: 9th Feb 2019
Date closed: 20th Feb 2019
Deadline: 26th Jun 2019

Photo of Reuben B

Child Interests

Trains, animals, lego, bikes.
Colour orange.


Biography

When Reuben was born everything appeared ok until we came to feed him. He wouldn't suck and the milk just pooled in his mouth. He suddenly went grey/blue and needed attention quickly. A team of doctors and midwives worked on him for a while then everything seemed to be ok again. The midwife decided to try to feed him herself to see what happened and the same happened again but this time it took longer working on him to get him stable. He was rushed to the neonatal unit for further investigation. Later that day he was diagnosed with tracheo-oesophageal fistula with oesophageal atresia. He was born unable to swallow so the milk had been overflowing to his trachea and his lungs were full of milk. They also said they were sure he had a hole in his heart too. He was transferred to a specialist childrens hospital an hour away. Once there his diagnosis was confirmed and we were told he would need major life saving surgery at a day old. The following day he received the surgery to cut the bottom of the pouch and the oesophagus away from the trachea then join them together to form an oesophagus that went from his throat to stomach. The surgery was very difficult due to the size of him and the distance between the two ends of his oesophagus. This left a very tight join and narrow oesophagus. Also in surgery his phrenic nerve had been damaged so his lung later collapsed and he needed a 2nd chest drain. He had many more scary moments as he spent 7 weeks in intensive care. He required oxygen and continued to not be able to be fed orally so continued being tube fed. He went back to theatre often to have his oesophagus dilated where the scar tissue shrank and caused him to choke on his own saliva. Once on the ward he spend a further 4/5 weeks going backwards and forwards to theatre and struggling to eat. Whilst in hospital a cardiologist was visiting from the children's heart unit where they put him on medication until they could see him properly after his discharge from hospital.
Once we got him home it was time to focus on his heart and at 5 months old we took him for an ecg and echo. This is when we were told he had 4 problems with his heart and he would require open heart surgery to correct them. At 7 months old he had his surgery and as far as we knew it went well and his heart would recover and be like a healthy heart. We had regular checkups in the first few years then went to yearly checkups. Everything seemed fine until last year when they found that the pulmonary stenosis has returned and he will require open heart surgery again in the near future.
After his heart surgery, Reuben struggled with reflux and continued to not take anything orally so it was decided he would have keyhole surgery to do a fundoplication to help with the reflux and they would do a dilatation and put a gastrostomy in as well at the same time. As Reuben grows his scar tissue in his oesophagus doesn't grow with him so he has regular check ups with his surgeon and continued dilatations to stretch the scar tissue. He also requires MRI scans to monitor his heart. To date he has had 28 general anaesthetics and hundreds of other procedures.



Patterns


1.Steam train cross stitch pattern, traditional realistic railway locomotive green train engine cream/red carriage esty.comStitcher: Barbara, Midhurst , UK
In Progress

2.Quick &Easy Issue 109 Steam Train emerging from tunnel - will change to OrangeStitcher: EE(Beth)Filmer, Adelaide, Australia
Received

3.WOXS issue 269 “Railway scene” Steam trainStitcher: Ann, Billericay, UK
Received

4.Old Magazine called TV Cross Stitch Ivor the EngineStitcher: Mark Grogan, Oldham , UK
Received

5.Bought on Etsy Old fashioned engine pulling coal truckStitcher: Julie Robbins, Bromsgrove , UK
Received

6.WOXS supplement "Beautiful Britain" by Maria Diaz Steam train travelling through the countrysideStitcher: Katie, York, England
In Progress

7.Cross stitch kit by PANNA The misty trainStitcher: Michaela, Okehampton, UK
In Progress

8.Cross stitcher magazine issue 185 Train, green engine and red carriages, yellow trim around engine door, driving from left to right. Stitcher: Ruth Horn, Co Durham, GB
Received

9.TV stitcher magazine Thomas the tank engineStitcher: Emma Robson, Doncaster, England
Received

10.Thomas the Tank Engine cross stitch by Helen Turvey ISBN 0600588564 Thomas and JamesStitcher: Sally, Hull, UK
Received

11.LQ files Train modern by Gemma o in orange and blueStitcher: C McDonald, Altrincham, UK
In Progress

12.Label Stitcher: Paula Dewar, Glasgow, Scotland
Received


Squares received

Cross stitch square for Reuben B's quilt
Stitched by: Paula Dewar
Submitted: Mar 2019

Cross stitch square for Reuben B's quilt
Stitched by: EE(Beth)Filmer
Submitted: Feb 2019

Cross stitch square for Reuben B's quilt
Stitched by: Ann
Submitted: Feb 2019

Cross stitch square for Reuben B's quilt
Stitched by: Mark Grogan
Submitted: Mar 2019

Cross stitch square for Reuben B's quilt
Stitched by: Julie Robbins
Submitted: Apr 2019

Cross stitch square for Reuben B's quilt
Stitched by: Ruth Horn
Submitted: Apr 2019

Cross stitch square for Reuben B's quilt
Stitched by: Emma Robson
Submitted: Mar 2019

Cross stitch square for Reuben B's quilt
Stitched by: Sally
Submitted: Apr 2019


Card

Card for Reuben B
Stitched by: Beth Filmer

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