Love Quilts on Facebook

Join us
on Facebook

Love Quilts on Twitter

Follow us
on Twitter

RSS
LoveQuiltsUK - Harrison H's quilt

Harrison H's quilt    (Quilt Completed)

Born:2007
Illness: Dravet Syndrome: SCN1A Mutation Confirmed, Severe Myoclonic Epilepsy

Theme: Thomas the Tank and Pixar Cars

Quilt delivered: 11th Sep 2019
Photo of Harrison H

Thank you

Coming soon...



Finished photos

Coming soon...


Quilted by: Jan S (Lincs)

Individual squares

Cross stitch square for Harrison H's quilt
Stitched by: Alison (+)
Submitted: Aug 2019

Cross stitch square for Harrison H's quilt
Stitched by: Angie (+)
Submitted: Jun 2019

Cross stitch square for Harrison H's quilt
Stitched by: Gemma.H (+)
Submitted: Jun 2019

Cross stitch square for Harrison H's quilt
Stitched by: Jackie (+)
Submitted: Aug 2019

Cross stitch square for Harrison H's quilt
Stitched by: Jane Ashley (+)
Submitted: Sep 2019

Cross stitch square for Harrison H's quilt
Stitched by: Kaz Bowen (+)
Submitted: Aug 2019

Cross stitch square for Harrison H's quilt
Stitched by: Marie (+)
Submitted: Aug 2019

Cross stitch square for Harrison H's quilt
Stitched by: Merete (+)
Submitted: Jul 2019

Cross stitch square for Harrison H's quilt
Stitched by: Naomi Lucas (+)
Submitted: May 2019

Cross stitch square for Harrison H's quilt
Stitched by: Roberta H (+)
Submitted: Jul 2019

Cross stitch square for Harrison H's quilt
Stitched by: Ruth Horn (+)
Submitted: May 2019

Cross stitch square for Harrison H's quilt
Stitched by: Sandra (+)
Submitted: May 2019


Card

Card for Harrison H
Stitched by: Leanne Malcolmson

Biography

Harrison was born in October 2007 after an easy, nothing out of the ordinary pregnancy and if I'm honest not that much of a difficult birth. Obviously I don't tell my husband that, wouldn't want him to think I'd ever do it again!

Harry weighed in at a massive 6lb and we were subsequently released into the big bad world the following morning.

A new baby is never an easy thing to accommodate but I think my husband and I adjusted well until our world totally fell apart! At around the 6month mark I was feeding Harry a particularly messy dinner when I noticed that he was intermittantly 'jumping' like he had hiccups. Harry ended up in Peterborough General Hospital in their paediatric high dependency unit following a seizure that lasted over 2 hours! He was massively sedated and I can honestly say I have never been so scared in my life.

We were sent home after 3 days but were back within 2. This time his seizure started at bath time and lasted over 3 hours. We were transported to Addenbrookes Hospital in Cambridge where we spent 10 days in paediatric intensive care and met someone that I will be eternally grateful to.

Dr Alisdair Parker, senior neurology consultant, saw us a further 4 times following prolonged seizures, before he passed us a leaflet explaining that he was fairly convinced that Harry had Dravet Syndrome. A DNA test confirmed the gene mutation approximately 6 months later.

Harry is now 12 years old, he continues to have seizures daily. He has a developmental age of just 12/18 months, he has no speech, is doubly incontinent, sleeps for not more than 3 hours a night, can walk only short distances with the aid of leg splints and has been diagnosed as severely autistic. Harry is unfortunately a typical young Dravet sufferer, and a beautiful, happy, busy little boy! He is our little Warrior!


Back to home