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LoveQuiltsUK - Harrison H's quilt

Harrison H's quilt    (Quilt Closed)

Illness: Dravet Syndrome: SCN1A Mutation Confirmed, Severe Myoclonic Epilepsy

Theme: Thomas the Tank and Pixar Cars

Date opened: 10th Apr 2019
Date closed: 18th Apr 2019
Deadline: 26th Aug 2019

Photo of Harrison H

Theme details

Thomas the Tank and Pixar Cars - Any characters from Thomas or Pixar Cars (or Pixar Planes if there are any legal patterns?)

Child Interests

Harry adores Disney Pixar Cars & Planes. He is also very happy watching Thomas the Tank Engine.
His favourite activity however is dancing, he can find a beat in any piece of music, so our house is a very noisy, bouncy, sing-a-long type of Home!


Harrison was born in October 2007 after an easy, nothing out of the ordinary pregnancy and if I'm honest not that much of a difficult birth. Obviously I don't tell my husband that, wouldn't want him to think I'd ever do it again!

Harry weighed in at a massive 6lb and we were subsequently released into the big bad world the following morning.

A new baby is never an easy thing to accommodate but I think my husband and I adjusted well until our world totally fell apart! At around the 6month mark I was feeding Harry a particularly messy dinner when I noticed that he was intermittantly 'jumping' like he had hiccups. Harry ended up in Peterborough General Hospital in their paediatric high dependency unit following a seizure that lasted over 2 hours! He was massively sedated and I can honestly say I have never been so scared in my life.

We were sent home after 3 days but were back within 2. This time his seizure started at bath time and lasted over 3 hours. We were transported to Addenbrookes Hospital in Cambridge where we spent 10 days in paediatric intensive care and met someone that I will be eternally grateful to.

Dr Alisdair Parker, senior neurology consultant, saw us a further 4 times following prolonged seizures, before he passed us a leaflet explaining that he was fairly convinced that Harry had Dravet Syndrome. A DNA test confirmed the gene mutation approximately 6 months later.

Harry is now 12 years old, he continues to have seizures daily. He has a developmental age of just 12/18 months, he has no speech, is doubly incontinent, sleeps for not more than 3 hours a night, can walk only short distances with the aid of leg splints and has been diagnosed as severely autistic. Harry is unfortunately a typical young Dravet sufferer, and a beautiful, happy, busy little boy! He is our little Warrior!


1.TV Stitcher magazine, issue 3, 2004 Thomas the Tank EngineStitcher: Jackie, York, England
In Progress

2.Percy engine , one of Thomas’ friendsStitcher: Jane Ashley, Milnrow, England
In Progress

3.Pixar carStitcher: Angie, Belper, UK
In Progress

4.Own design for LQ Dusty and Skipper from PlanesStitcher: Merete, Allerød, Denmark
In Progress

5.Trevor the Traction EngineStitcher: Marie, Yeovil, UK
In Progress

6.Disney a punto croce, issue 87 Hudson HornetStitcher: Sandra, Shefford, England

7.George the steam roller from Thomas the Tank engine friendStitcher: Ruth Horn, Co Durham, UK

8.From May 2001 Issue of Cross Stitcher Thomas the Tank Engine (with background removed to keep within size limits)Stitcher: Naomi Lucas, King's Lynn, UK

9.Mater from pixar carsStitcher: Roberta H, King's Lynn, England
In Progress

10.Disney Punto a Croce Lighting McQueenStitcher: Gemma.H, Glos, UK

11.Disney a punto croce no 54 Karl from Pixar CarsStitcher: Kaz Bowen, Wakefield, UK
In Progress

12.Label Stitcher: Alison, Oldham, UK
In Progress

Squares received

Cross stitch square for Harrison H's quilt
Stitched by: Sandra
Submitted: May 2019

Cross stitch square for Harrison H's quilt
Stitched by: Ruth Horn
Submitted: May 2019

Cross stitch square for Harrison H's quilt
Stitched by: Naomi Lucas
Submitted: May 2019

Cross stitch square for Harrison H's quilt
Stitched by: Gemma.H
Submitted: Jun 2019


Card for Harrison H
Stitched by: Leanne Malcolmson

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