Ella had her first seizure at 8 weeks old, with them becoming more frequent weeks later. Ella went through test after test as a baby and they all came back negative. In June 2016 genetics came back with SCN1A....Dravet syndrome. Our whole world was turned upside down.
To this day Ella has had over 300 seizures and spent many nights in hospital. Watching your little girl lifeless and not responding to medication and seizing for hours continuously is utter heartbreaking. Ella takes daily medication but still doesn't have full seizure control. We are currently waiting for a referal for VNS.
Ella has been through more in her little few years than most adults go through in their life time. She doesn't let it get in her way, she wakes up every morning and carries out her mischievous tricks! There isn't a day goes by that you don't see a smile on her face.
Ella has a younger sister called Daisy who secretly she adores! She has a true sisterly bond that involves Ella pushing her over - like any normal big sister really!
Ella has just completed her first year of school at our local SEN school, we were very lucky to have an amazing one literally on our doorstep. We didn't think she would cope with full time hours, however, she did and proved us wrong and absolutely loved it!