Love Quilts on Facebook

Join us
on Facebook

Love Quilts on Twitter

Follow us
on Twitter

LoveQuiltsUK - Thomas F's quilt

Thomas F's quilt    (Quilt Closed)

Illness: Syngap 1

Theme: Football

Date opened: 11th Mar 2020
Date closed: 19th Jan 2038
Deadline: 26th Jul 2020

Photo of Thomas F

Theme details

Football - Liverpool is his team

Child Interests

Football, his iPad, watching the Sharer Family on YouTube, swimming, his hot tub.



Thomas was about 9 months the 1st time we noticed a seizure, although we didn't know it was a seizure at first. Thomas wasn't making his milestones, but this didn't worry us as he was our 1st child so everything was new to us. We then asked for Thomas to be referred to the child development centre. Within weeks he was referred to neurology and few weeks later we were told he had epilepsy, then global developmental delay. Over the years Thomas has had many tests and hospital visits. Specialists were convinced his problems were genetic but all tests were negative.
Thomas has displayed very challenging and, at times, aggressive behaviour so we were referred to LD CAMHS and then they decided to offer Thomas an autism assessment. At 8 years old he was diagnosed with autism.
Thomas's health and weight started to fluctuate but this was put down to his autism and being a faddy eater, then finally a result came back from genetics. Thomas participated in the DDD study which showed a mutation in the syngap gene. Thomas then got answers to his faddy eating problems, he was aspirating. It was decided that Thomas required a gastrostomy, but he also now has a problem with his stomach, so Thomas will be going into hospital next month to have surgery to fix his stomach and have his gastrostomy done.


1.Football Star by Climbing Goat Stitcher: Val Gilbert, Coningsby , UK
In Progress

2.Climbing Goat Designs Footballer silhouettesStitcher: Nicola, St Albans, UK
In Progress

3.Liverpool crestStitcher: Jennie, Worcester, England
In Progress

4.Crazy for football from issue 164 Some designs Like a football and goalStitcher: Jodie Balaam, Lawshall, England
In Progress

5.Designed by Alexsandra Smet. ElCrossStitch from Etsy. Silhouette of footballer kicking a ball. Stitcher: Diana, Sussex, UK
In Progress

6. Football pitch in the shape of the world with a football and blue sky. Stitcher: Alisha, Birmingham, UK
In Progress

7.Football Pitch by Steph Rose (with colours changed to Liverpool) Stitcher: Erin, Neath, Wales
In Progress

8.Liverpool phrases and quotes - own design - in filesStitcher: Elaine Martin, Birkenhead, Wirral, UK
In Progress

9.BOTD footballer BOTD footballerStitcher: Heather, Littleborough, England
In Progress

10.Les coeurs d’isa tome 2 Football heart with football players will do strip in red.Stitcher: C McDonald, Altrincham, UK
In Progress

11.Climbing Goats Footballer kicking large ballStitcher: Eileen, Newcastle, UK
In Progress

12.Label Stitcher: Pat Brown, Warminster, England
In Progress

Squares received

None yet. (Quilt opened on 11th Mar 2020)


Card for Thomas F
Stitched by: Sandra

Back to home