Abigail was born with spina bifida and she developed hydrocephalus in her first week of life. By her one month anniversary Abigail had undergone three major surgeries. Abigail developed over the next five months and then tragedy struck when she started to have seizures. She was diagnosed with West Syndrome, a catastrophic epilepsy. The constant seizures continued despite everybody’s best efforts to control them, causing massive irreversible brain damage. Abigail has had seizures most days of her life. The seizures have robbed her of her sight and she is now registered blind.
Abigail is now aged 11. She has recently received another epilepsy diagnosis of Lennox-Gaustaut syndrome. Her scoliosis is inoperable and has progressed to 96 degrees. She has also developed problems with her chest and spent three week in hospital just before Christmas in high dependency.
Abigail is a much loved daughter and sister. She loves attending school on a reduced timetable. Abigail has a lovely calm disposition. She rarely cries and is immensely brave. Abigail is on the ketogenic diet for her epilepsy so is tube fed.
Abigail loves music of all genres. She loves cuddly toys and her dogs Mabel and Ruby, a cockerpoo and Scottie. She loves visits to the theatre to hear live music. Abigail loves to be taken for walks in her moulded wheelchair, to the farm or seaside, she loves the sea breeze. Abigail loves water, her daily bubble baths and hydrotherapy at school. Abigail loves to be at the heart of her loving family . She particularly enjoys the company of Rosie and Florence her young nieces.
Despite all of her health challenges Abigail is fundamentally a happy child who makes the most of every situation.x