Love Quilts on Facebook

Join us
on Facebook

Love Quilts on Twitter

Follow us
on Twitter

LoveQuiltsUK - Leon P's quilt

Leon P's quilt    (Quilt Closed)

Illness: Tetralogy of Fallot with overriding aorta, PDA and VSD - Congenital Heart defect

Theme: Mixture

Date opened: 14th Feb 2024
Date closed: 25th Feb 2024
Deadline: 26th Jun 2024

Photo of Leon P

Theme details

Mixture (Cute or Realistic style) - Cats, please include one black and one ginger and white. A few general book patterns (eg stack of books) and some space/planets

Some hats on the label would be fun - see interests for details

Child Interests

Leon's favourite colour is green.
He's a bookworm, loves science fiction, myths, history and comics.
He has two cats, one black and one ginger and white.
He's a gamer. He enjoys Mine craft, Roblox and puzzle solving.
Likes space and planets.
Leon also has a thing for hats, he has a top hat and two fedoras!


Leon was born after a normal pregnancy with no issues identified at the scans. He was born in 2010 in Pontefract Hospital. He is a much longed for child. About three hours after he was born, my husband mentioned to the paediatric doctor his hands and feet were cold and blue. The doctor examined him and said he heard a heart murmur and it would probably resolve in time.

Leon was restless and wouldn't take any milk, which resulted in him becoming dehydrated. He was taken to the special baby unit in the hospital. On further examination they pressed the panic button and blue lighted him to Leeds General Infirmary where an amazing team swung into action to save his life.

Leon was diagnosed quite quickly with Tetralogy of fallot (TOF) with overriding aorta, ventral septal defect (VSD) and patent ductus arteriosus (PDA). His left pulmonary artery is like a squashed straw on the scans, so it only functions at 25% of normal capacity.

He was kept in hospital for three weeks and we got home on Christmas Eve. He had several spells where he would go blue and struggle to breathe, mostly when he tried to feed, this resulted in him being quite thin and underweight. He collapsed at home in May 2011 and was rushed to hospital. We were hoping to get him bigger and older before his main surgery, but Leon's heart had other ideas.

Leon had his open heart surgery in June 2011 where he had his first big repair, at 7 months old. His second surgery was at 14 months old. The doctors attempted to balloon angioplasty his left pulmonary artery to make it bigger.

He is now 13. He loves books, gaming and has joined the Rock Club at school. He'd love to be able to join his Dad on stage in his band. We have spent the intervening years trying to keep him as healthy and loved as possible. He has regular heart check-ups with the team at LGI. It's really hard not to wrap your child in bubble wrap and not let them out of your sight when you are told they are potentially life limited. But Leon has found his own limitations and manages them with help from his family, friends and school.

He started to decline last year, his stamina is quite low and his fatigue is much worse. He is sleeping a lot more. He has been listed for his next open heart surgery this year, this will replace the right pulmonary valve and attempt to sort out the left pulmonary artery narrowing.

But for now he is holding steady and doing as well as we can expect.


1.Climbing Goats design Hubble Space Telescope Hubble Space telescope Stitcher: Heather, Littleborough, England

2.Cross Stitch with Cattitude by Emma Congdon Right hand end of pattern with lots of black cats Stitcher: Sue Torode, Long Buckby, UK
In Progress

3.Cattitudes the eleventh litter booklet Ginger and white cat standing next to a small tin of fishStitcher: Karen Stephenson, Cambridgeshire, UK
In Progress

4.Realistic cat (black) Stitcher: Shirley, Worthing, Sussex, England
In Progress

5.Cross Stitched February issue. Ginger cat sitting on bookshelf with books next to it.Stitcher: Pauline, Broughton, UK

6.Https:// I will chart the wording "Reading takes me out of this world" and surround it with as many of the planets from Climbing Goats planets and sun pattern as fit.Stitcher: Elaine Martin, Birkenhead, Wirral, UK
In Progress

7.Stack of books in different colours Stitcher: Jodie Balaam, Lawshall, England

8.DMC Kit Cats and Kittens Fast Off Tabby cat sleeping in a wooden chestStitcher: Nicola, St Albans, UK

9.Sparrowheartcrafts on Etsy Rocket in space lift-off among the planets and stars By MereteStitcher: C McDonald, Altrincham, UK
In Progress

10.Star Gazing by Climbing GoatStitcher: Julie Robbins, Bromsgrove , UK
In Progress

11.Climbing Goat book heartStitcher: Eileen, Newcastle, UK
In Progress

12.Label Stitcher: Ellie, London, UK
In Progress

Squares received

Cross stitch square for Leon P's quilt
Stitched by: Heather
Submitted: Feb 2024

Cross stitch square for Leon P's quilt
Stitched by: Pauline
Submitted: Mar 2024

Cross stitch square for Leon P's quilt
Stitched by: Jodie Balaam
Submitted: Mar 2024

Cross stitch square for Leon P's quilt
Stitched by: Nicola
Submitted: Apr 2024

Back to home