Amelia was born at full term, but suffered deprivation of oxygen at birth, resulting in severe brain damage. She was resusitated and ventilated, she remained on the neonatal unit for 2 weeks. We were told that she could be severely mentally and physically disabled, she had seizures,and she was tube fed. As time went on, Amelia failed to thrive due to severe reflux,and just before her 1st birthday had a 3 hour operation to help stop her vomiting and to put a feeding tube in her tummy.
Amelia was officially diagnosed at 18 months,she cannot roll, sit, crawl, walk, talk or eat.She needs 1 to 1 assistance for everything that she does,she is totally dependent and needs close supervision for seizures, for which she needs emergency rescue medication.
Aside from all her problems Amelia is a very sociable little girl, always interested in what is going on and wanting to be involved. She is using eye-pointing to make choices and she can press a large switch to operate a toy, or to play a recorded message.
She suffers with regular chest infections,and has recently been found to have a heart murmur, which will be investigated at the cardiology clinic in August. She remains totally tube fed, but enjoys a small taste of chocolate or icecream occasionally.
Amelia loves anything silly, she has an infectious giggle and a great sense of humour.:)