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LoveQuiltsUK - Rose's quilt

Rose's quilt    (Quilt Closed)

Born:2021
Illness: Spina bifida, spinal abscesses, hydrocephalus, monoplegia

Theme: Roses and Hearts

Date opened: 11th Sep 2024
Date closed: 15th Sep 2024
Deadline: 26th Jan 2025

Photo of Rose

Theme details

Roses and Hearts - Red, White and Purple.

Perhaps a rose and a few stars on the label?



Child Interests

Roses.
She likes red and purple mainly but rainbows are great as she loves saying the colours.
Girly, floral, hearts, stars.


Biography

Rose was born with a sacral dimple and strawberry birthmark both on the lower back/bottom area. These are usually checked with an ultrasound and further investigation should anything show abnormal. This was not done. Rose was checked at the 8-week newborn screen with the GP and mum was asked to show the birthmark and dimple to the GP by the health visitor. The GP didn’t refer Rose for further investigation and decided it wasn’t vascular and didn’t need following up.

At 8 months old Rose became very poorly. After a week of back and forth to the GP and local hospital Rose’s left leg stopped moving and became very cold. She was sent to the childrens hospital in Leeds where investigations took place. After a CT scan it was discovered Rose had hydrocephalus and an MRI scan was done to find the cause.

Rose had lesions from her sacral spine to the thoracic spine. It was thought this was either tumours or abscesses. It was extensive intradural abscesses. Rose was not emptying her bladder and intermittent catheterisation started. After 2 months in hospital Rose was discharged but readmitted 2 days later with potential shunt malfunction. Rose rapidly declined, she had no shunt issue but a UTI. This resulted in sepsis and was treated with antibiotics and fluid bolus. Rose spent time in ICU with septic shock and tachycardia. Rose recovered and was discharged with new medications for bladder and bowel and an indwelling catheter prescribed to use at night time. Mum and dad were trained on intermittent catheterisation and now indwelling/foley catheters.

Rose was referred to physiotherapy, occupational therapy, ophthalmology, child development reviews, paediatrics, urology, orthopaedics for leg and spine, shunt nurse and urology CNS.

Rose has been through multiple surgeries on her brain and spine, and is waiting on future surgeries for other areas, she is so brave and resilient, nothing phases her even now. We think she appreciates the small happy times she has which for 3 is beyond her years.



Patterns


1.French heart of roses.Stitcher: Leanda Vickers, Oldham , England
Received

2.DM Cross stitch and n Etsy Heart of Roses and other smaller flowers Stitcher: Alison, Ormskirk, UK
Received

3.Ann Logan www.cross-stitch-pattern.net Red rose and two rosebudsStitcher: Ann, Billericay, UK
In Progress
https://www.cross-stitch-pattern.net/roses-17-640-...

4.By Artery Celtic knot heart in purpleStitcher: Nicola, St Albans, UK
Received

5.StickdesignJuliane. Etsy Monochrome heartStitcher: Miss Debbie Elkington, Boston, Lincs, UK
Received

6.Etsy LabPattern. Rose with butterfliesStitcher: Sharon Hill, Billinge, Wigan, UK
Received

7.Coeurs d'Isa "Je t'aime" in a heart shape, decorated with roses Stitcher: Janet T, South Wales, UK
Received

8.Rose Heart by Susan Bates (Spring XS Favorite mag 2015)Stitcher: Val Gilbert, Coningsby , UK
Received

9.From Etsy The Stitch Patterns. Hearts in red and purple. Stitcher: Nisha Chauhan, Leicester, UK
Received
https://www.etsy.com/uk/listing/761863403/hearts-c...

10.Own design Red rose surrounded by heartsStitcher: Elizabeth, Shipley, UK
Received

11.Heart Swirl by PineconeMcGee on Etsy. Will change design to preferred colours. Stitcher: Karen Burton, Peterborough, UK
In Progress

12.Label Stitcher: Emily Baker, Rhyl, Denbighshire, Wales
Received


Squares received

Cross stitch square for Rose's quilt
Stitched by: Emily Baker
Submitted: Nov 2024

Cross stitch square for Rose's quilt
Stitched by: Leanda Vickers
Submitted: Oct 2024

Cross stitch square for Rose's quilt
Stitched by: Alison
Submitted: Nov 2024

Cross stitch square for Rose's quilt
Stitched by: Nicola
Submitted: Sep 2024

Cross stitch square for Rose's quilt
Stitched by: Miss Debbie Elkington
Submitted: Sep 2024

Cross stitch square for Rose's quilt
Stitched by: Sharon Hill
Submitted: Nov 2024

Cross stitch square for Rose's quilt
Stitched by: Janet T
Submitted: Nov 2024

Cross stitch square for Rose's quilt
Stitched by: Val Gilbert
Submitted: Nov 2024

Cross stitch square for Rose's quilt
Stitched by: Nisha Chauhan
Submitted: Nov 2024

Cross stitch square for Rose's quilt
Stitched by: Elizabeth
Submitted: Oct 2024


Card

Card for Rose
Stitched by: Marilyn Foyle

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