Talia May was diagnosed with Cystic Fibrosis when she was just over 2 weeks old on the 14th November 2014, we are coming to terms with this and have the best family and friends who have been amazing. Talia also has a dedicated team of 6 people who will help care for her during her life.
At first you're full of shock, hurt, anger and of course wondering what the future holds. Although it's very new and very raw we have spent every waking hour researching the condition and of course spent time with doctors to understand more, We've still a lot to learn. Although there is currently no cure for Cystic Fibrosis there are lots of things we can do to help ease the effects. Talia will need medication, a special diet and physio for the rest of her life, it will quickly become the norm for her and we have read so many positive stories that have filled us with hope for a bright and long future together. We just need to do things a little differently and stay positive. Talia started her medication in November 2014 and begins her visits to the specialist team of people who will look after her, they sure have become our extended family as they have with the other small group of patients they look after.
Talia, well she has been just brilliant, loving, so strong, bubbly full of life and making each person she meets smile from ear to ear. This is why we take a leaf from her book, there's no time to question why, how etc.
Since Talia May diagnosed she started off great, come August 2015 she was admitted into hospital for 4 nights / 5 days with a bowel blockage. Due to her cystic fibrosis. She was nil by mouth for 4 days with lots of medication and attention to unblock her bowels was dreadful to see but from start to finish she done it with a smile.. She is a warrior. In March 2016 she was then admitted again for 2 weeks worth of IVs as she grew a bug on her cough swab called Pseudomonas aeruginosa. She then and currently now on a nebuliser till further notice, until her team decide she's ok to come off it with three clear cough swabs in her next coming hospital appointments. She's had a tough start to 2016 at such young age.
She's our world and more, we will kick Cystic Fibrosis!
"You never know how strong you are until being strong is the only choice you have"